Centre for Research Ethics & Bioethics (CRB)

Publications from Mind the Risk

Our general publishing strategy for the entirety of the project is to publish articles in
international peer reviewed journals in English. Given the multi-disciplinary nature of
the group, each partner will publish their results in appropriate journals for their
subject and audience. We encourage and support partners to publish in open access
journals and/or to make their publications available (even if only the proofs) via their
research group/university websites.

Mind the Risk researchers will participate in a forthcoming special issue of the Journal of Risk Research on concepts of risk information in genetics.

Published articles

Leefman J, Schaper M, Schicktanz S, The Concept of “Genetic Responsibility” and Its Meanings: A Systematic Review of Qualitative Medical Sociology Literature, Front. Sociol., published online 24 January 2017

Falahee M., Simons G, Buckley CD, Hansson M., Stack RJ, and Raza Km, Patients' perceptions of their relatives' risk of developing rheumatoid arthritis and of the potential for risk communication, prediction and modulation, Arthritis Care & Research, published online 20 December 2016

Oliveri S, Masiero M, Arnaboldi P, Cutica I, Fioretti C, & Pravettoni G, Health Orientation, Knowledge, and Attitudes toward Genetic Testing and Personalized Genomic Services: Preliminary Data from an Italian Sample. BioMed Research International, published online 12 December 2016.

Georgsson S, Sahlin E, Iwarsson, Nordenskjöld M, Gustavsson P & Iwarsson E. (2016). Knowledge and Attitudes Regarding Non-Invasive Prenatal Testing (NIPT) and Preferences for Risk Information among High School Students in Sweden, Journal of Genetic Counseling, published online 2 August 2016.

Kihlbom U, Genetic Risk and Value, Journal of Risk Research, published online 1 July 1 2016.Sahlin, E., Nordenskjöld, M., Gustavsson, P.,Wincent, J., Georgsson, S,† & Erik Iwarsson†) (2016). These authors contributed equally as senior authors to this work, Positive attitudes towards non-invasive prenatal testing (NIPT) in a Swedish cohort of 1,003 pregnant women, PLOS ONE, published online 19 May 2016.

Stack R, Stoffer M, Englbrecht M, Mosor E, Falahee M, Simons G, Smolen J, Schett G, Buckley C, Kumar K, Hansson M, Hueber A, Stamm T and Raza K, Perceptions of first degree relatives of patients with rheumatoid arthritis about their personal risk of, and predictive testing for, rheumatoid arthritis: a cross-European qualitative study, BMJ Open, 2016;6(6): e010555

Oliveri S, Howard HC, Renzi C, Hansson MG & Pravettoni G, Anxiety delivered direct-to-consumer: are we asking the right questions about the impacts of DTC genetic testing?, Journal of Medical Genetics, 2016;53(12):798-799.

Oliveri S & Pravettoni G, The disclosure of direct-to-consumer genetic testing: sounding out the psychological perspective of consumers, Biology and Medicine, 2016:8(5)

Oliveri S, Pravettoni G, Fioretti C, & Hansson MG, Let the individuals directly concerned decide: a solution to tragic choices in genetic risk information, Public Health Genomics, 2016;19(5):307-313.

Falahee M, Simons G, Raza K and Stack RJ, Healthcare professionals’ perceptions of risk in the context of genetic testing for the prediction of chronic disease: A qualitative metasynthesis, Journal of Risk Research, published online 11 Mar 2016

Bayliss K, Raza K, Simons G, Falahee M, Hanson M, Starling B and Stack RJ, Perceptions of predictive testing for those at risk of developing chronic inflammatory disease: a meta-synthesis of qualitative studies, Journal of Risk Research, published online 11 March 2016 10.1080/13669877.2015.1119183

Perry J, Wöhlke S, Hessling AC, Schicktanz S, Why take part in personalised cancer research? Patients’ genetic misconception, genetic responsibility and incomprehension of stratification—an empirical-ethical examination, European Journal of Cancer Care Online August 10 2016, 10.1111/ecc.12563

Gorini A & Pravettoni G, Why do we pay for information that we won’t use? A cognitive-based explanation for genetic information seeking, European Journal of Human Genetics, published online 9 September 2015

Oliveri S, Renzi C, Masiero M, & Pravettoni G, Living at risk: factors that affect the experience of direct-to-consumer genetic testing, Mayo Clin Proc, October 2015;90(10):1323-1326.

Oliveri S, Renzi C, & Pravettoni G, Toward an in-depth profiling of DTC users, Clinical genetics, 2015;88(5):505-506.

Viberg J, Segerdahl P, Langenskiöld S, Hansson MG, Freedom of Choice About Incidental Findings Can Frustrate Participants' True Preferences, Bioethics, Article first published online: 23 APR 2015 DOI: 10.1111/bioe.12160

Kalokairinou L, Howard HC, Borry P, Changes on the horizon for consumer genomics in the EU, Science, 2014:346(6207); 296-298

Kalokairinou L, Howard HC, Borry, P, Direct-to-consumer
genetic testing, Encyclopedia of Life Sciences, Wiley, edited by D. N. Cooper

Viberg J, Hansson MG, Langenskiöld S, Segerdahl P, Incidental findings: the time is not yet ripe for a policy for biobanks, European Journal of Human Genetics advance online publication, 2014;22:437-44