Emilia Niemiec

Emilia Niemic


Emilia Niemiec är postdocforskare i SIENNA-projektet (Stakeholder-informed ethics for new technologies with high socio-economic and human rights impact).

E-post: niemiec.emilia@gmail.com

Senaste publikationerna

  • Vears, Danya F.; Niemiec, Emilia; Howard, Heidi Carmen; Borry, Pascal et al.

    Analysis of VUS reporting, variant reinterpretation and recontact policies in clinical genomic sequencing consent forms

    Ingår i European Journal of Human Genetics, s. 1743-1751, 2018.

  • Middleton, Anna; Milne, Richard; Thorogood, Adrian; Kleiderman, Erika et al.

    Attitudes of publics who are unwilling to donate DNA data for research.

    Ingår i European Journal of Medical Genetics, 2018.

  • Vears, D. F.; Niemiec, Emilia; Howard, Heidi Carmen; Borry, P. et al.

    How do consent forms for diagnostic high-throughput sequencing address unsolicited and secondary findings?: A content analysis

    Ingår i Clinical Genetics, s. 321-329, 2018.

  • Niemiec, Emilia; Vears, D. F.; Borry, P.; Howard, Heidi Carmen et al.

    Readability of informed consent forms for whole-exome and whole-genome sequencing

    Ingår i Journal of Community Genetics, s. 143-151, 2018.

    Open access
  • Middleton, Anna; Niemiec, Emilia; Prainsack, Barbara; Bobe, Jason et al.

    'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods

    Ingår i Personalized Medicine, s. 311-318, 2018.

    Open access
  • Niemiec, Emilia; Kalokairinou, Louiza; Howard, Heidi Carmen

    Current ethical and legal issues in health-related direct-to-consumer genetic testing

    Ingår i Personalized Medicine, s. 433-445, 2017.

    Open access
  • Niemiec, Emilia; Borry, Pascal; Pinxten, Wim; Howard, Heidi Carmen et al.

    Content Analysis of Informed Consent for Whole Genome Sequencing Offered by Direct-to-Consumer Genetic Testing Companies

    Ingår i Human Mutation, s. 1248-1256, 2016.

    Open access
  • Niemiec, Emilia; Howard, Heidi Carmen

    Ethical issues in consumer genome sequencing: Use of consumers' samples and data

    Ingår i Applied and Translational Genomics, s. 23 23-30 30, 2016.

    Open access
  • Borry, Pascal; Chokoshvili, Davit; Niemiec, Emilia; Kalokairinou, Louiza et al.

    Current Ethical Issues Related to the Implementation of Whole-Exome and Whole-Genome Sequencing

    Ingår i Movement Disorder Genetics, 2015.

  • Nyikó, Tünde; Kerényi, Farkas; Szabadkai, Levente; Benkovics, Anna H et al.

    Plant nonsense-mediated mRNA decay is controlled by different autoregulatory circuits and can be induced by an EJC-like complex

    Ingår i Nucleic Acids Research, s. 6715-28, 2013.

    Open access