Centre for Research Ethics & Bioethics (CRB)

Public-Private Partnerships: Workshop

Welcome to a workshop on ethically sustainable partnership between industry and public funded research initiatives using rare diseases as a case study. Uppsala on November 7-8 2016.

Welcome to Uppsala!

In recent years, universities have done a lot of work to encourage research partnerships with industry. Medical schools are encouraging their research faculties to pursue entrepreneurial strategies (start ups) to start companies and partnerships with industry.

Public private partnerships in research have been debated for a long time. On the one side there is a perceived need to involve industry in the research-flow in order to maximize efforts in the search for results and therapies. On the other, there is fear and concern regarding the ethical challenges, conflicts of interest and exploiting of public resources.

genetic research and rare diseases

Publically funded research in the biomedical field collects great amounts of data and biological samples. Public private partnership is especially interesting in the rare disease field. But there are barriers. We lack generalized common regulatory, technological and financially supportive frameworks. This places a burden on the potential positive impacts on the wellbeing of citizens. There is a need to explore different partnership models and discuss their relevance for genomic research and the particular challenges for rare disease research.

About the workshop

During the workshop we investigate current practices for public private collaborations and initiatives on rare diseases. We hope to identify challenges and solutions in the light of ethically sustainable research through discussions on salient Public-Private Partnership initiatives and experiences and what we can draw from them.

The first day is divided into three informative sessions describing different forms of partnerships. The second day consists of a working session.

About the organisers

This workshop is arranged by Uppsala University's Centre for Research Ethics & Bioethics (CRB), RD-Connect and CHIPme. We welcome you to discuss public-private research initiatives in Uppsala on 7-8 November 2016.

On behalf of the organising committee,
Deborah Mascalzoni, Centre for Research Ethics & Bioethics (CRB), Uppsala University