Carrieri, Daniele; Howard, Heidi Carmen; Benjamin, Caroline; Clarke, Angus J. et al.

Recontacting patients in clinical genetics services: recommendations of the European Society of Human Genetics

Part of European Journal of Human Genetics, p. 169-182, 2019.

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Witt, Stefanie; Escherich, Gabriele; Rutkowski, Stefan; Kappelhoff, Gerhard et al.

Exploring the Potential of a Pretend Play Intervention in Young Patients With Leukemia

Part of Journal of Pediatric Nursing, p. E98-E106, 2019.

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Matar, Amal

Considering a Baby? Responsible Screening for the Future: Ethical and social implications for implementation and use of preconception expanded carrier screening in Sweden

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Slokenberga, Santa

Biobanking between the EU and Third Countries - Can Data Sharing Be Facilitated via Soft Regulatory Tools?

Part of European Journal of Health Law, p. 517-536, 2018.

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Spörndly, Robert; Eriksson, Stefan; Godskesen, Tove E.

Representation of Ethnic Minorities in Swedish Clinical Cancer Trials: A Qualitative Study of Physicians' Experiences

Part of Harvard Public Health Review, p. 1 1-10 10, 2018.

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Renzi, Chiara; Provencal, Nadine; Bassil, Katherine C; Evers, Kathinka et al.

From Epigenetic Associations to Biological and Psychosocial Explanations in Mental Health.

Part of Progress in Molecular Biology and Translational Science, p. 299-323, 2018.

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Skogeland, Ulrika; de Monestrol, Isabelle; Godskesen, Tove E.

Experiences of Individuals Awaiting Lung Transplantation

Part of Respiratory care, p. 1535-1540, 2018.

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Vears, Danya F.; Niemiec, Emilia; Howard, Heidi Carmen; Borry, Pascal et al.

Analysis of VUS reporting, variant reinterpretation and recontact policies in clinical genomic sequencing consent forms

Part of European Journal of Human Genetics, p. 1743-1751, 2018.

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Gainotti, Sabina; Mascalzoni, Deborah; Bros-Facer, Virginie; Petrini, Carlo et al.

Meeting Patients' Right to the Correct Diagnosis: Ongoing International Initiatives on Undiagnosed Rare Diseases and Ethical and Social Issues

Part of International Journal of Environmental Research and Public Health, 2018.

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Delegates, Global Neuroethics Summit; Rommelfanger, Karen S.; Jeong, Sung-Jin; Ema, Arisa et al.

Neuroethics Questions to Guide Ethical Research in the International Brain Initiatives

Part of Neuron, p. 19-36, 2018.

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Schölin Bywall, Karin; Veldwijk, Jorien; Hansson, Mats G.; Kihlbom, Ulrik et al.

Patient Perspectives on the Value of Patient Preference Information in Regulatory Decision Making: A Qualitative Study in Swedish Patients with Rheumatoid Arthritis

Part of the patient - patient-centered outcomes research, 2018.

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Vears, D. F.; Niemiec, Emilia; Howard, Heidi Carmen; Borry, P. et al.

How do consent forms for diagnostic high-throughput sequencing address unsolicited and secondary findings?: A content analysis

Part of Clinical Genetics, p. 321-329, 2018.

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Samuel, Gabrielle; Howard, Heidi Carmen; Cornel, Martina; van El, Carla et al.

A response to the forensic genetics policy initiative's report "Establishing Best Practice for Forensic DNA Databases"

Part of Forensic Science International, p. E19-E21, 2018.

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Kodra, Yllka; Weinbach, Jerome; Posada-de-la-Paz, Manuel; Coi, Alessio et al.

Recommendations for Improving the Quality of Rare Disease Registries

Part of International Journal of Environmental Research and Public Health, 2018.

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Whichello, Chiara; Schölin Bywall, Karin; Mauer, Jonathan; Watt, Stephen J. et al.

Mapping benefit-risk decision-making processes and identifying decision points with the potential to include patient preference information throughout the medical product lifecycle

Part of Pharmacoepidemiology and Drug Safety, p. 206-206, 2018.

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Whichello, Chiara; Soekhai, Vikas; Levitan, Bennett; Veldwijk, Jorien et al.

Compendium of methods for measuring patient preferences in medical treatment

Part of Pharmacoepidemiology and Drug Safety, p. 517-518, 2018.

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Kihlbom, Ulrik; Russo, Selena; Monzani, Dario; Stichele, Geert Vander et al.

Patient-centered benefit-risk decision-making and the role of educational tools and psychological instruments in preference elicitation-Year 1 of IMI prefer

Part of Pharmacoepidemiology and Drug Safety, p. 512-512, 2018.

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Farisco, Michele; Evers, Kathinka; Changeux, Jean-Pierre

Drug addiction: from neuroscience to ethics

Part of Frontiers in Psychiatry, 2018.

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Godskesen, Tove; Fernow, Josepine; Eriksson, Stefan

Quality of online information about phase I clinical cancer trials in Sweden, Denmark and Norway

Part of European Journal of Cancer Care, 2018.

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Matar, Amal; Höglund, Anna T; Hansson, M G

“A perfect society”— Swedish policymakers’ ethical and social views on preconception expanded carrier screening

Part of Journal of Community Genetics, 2018.

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Pettersson, Mona

COMPETENCE AND COMMUNICATION: Do Not Resuscitate Decisions in Cancer Care

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Ancillotti, Mirko; Eriksson, Stefan; Veldwijk, Jorien; Nihlén Fahlquist, Jessica et al.

Public awareness and individual responsibility needed for judicious use of antibiotics: a qualitative study of public beliefs and perceptions

Part of BMC Public Health, 2018.

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Farisco, Michele; Salles, Arleen; Evers, Kathinka

Neuroethics: A Conceptual Approach

Part of Cambridge Quarterly of Healthcare Ethics, p. 717-727, 2018.

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Höglund, Anna T; Falkenström, Erica

The status of ethics in Swedish health care management:: a qualitative study

Part of BMC Health Services Research, p. 1-8, 2018.

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Godskesen, Tove

God vård innebär att sällsynta sjukdomar ges resurser

Part of Dagens Medicin, 2018.

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Godskesen, Tove; Petri, Suzanne; Eriksson, Stefan; Halkoaho, Arja et al.

When Nursing Care and Clinical Trials Coincide: A Qualitative Study of the Views of Nordic Oncology and Hematology Nurses on Ethical Work Challenges

Part of Journal of Empirical Research on Human Research Ethics, p. 475-485, 2018.

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Viberg Johansson, Jennifer

INDIVIDUAL GENETIC RESEARCH RESULTS: Uncertainties, Conceptions, and Preferences

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Pettersson, Mona; Hedström, Mariann; Höglund, Anna T

Ethical competence in DNR decisions: a qualitative study of Swedish physicians and nurses working in hematology and oncology care

Part of BMC Medical Ethics, 2018.

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Salles, Arleen; Evers, Kathinka; Farisco, Michele

Neuroethics and Philosophy in Responsible Research and Innovation: The Case of the Human Brain Project

Part of Neuroethics, 2018.

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Falkenström, Erica; Höglund, Anna T

På spaning efter etik: Etisk kompetens och ansvarstagande för ledning ochstyrning av hälso- och sjukvården

Appell förlag, 2018.

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Middleton, Anna; Niemiec, Emilia; Prainsack, Barbara; Bobe, Jason et al.

'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods

Part of Personalized Medicine, p. 311-318, 2018.

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de Bekker-Grob, Esther W.; Veldwijk, Jorien; Jonker, Marcel; Donkers, Bas et al.

The impact of vaccination and patient characteristics on influenza vaccination uptake of elderly people: A discrete choice experiment

Part of Vaccine, p. 1467-1476, 2018.

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de Bekker-Grob, Esther W.; Juhaeri, Juhaeri; Kihlbom, Ulrik; Levitan, Bennett et al.

Giving patients' preferences a voice in the medical product lifecycle: why, when and how?: The public-private PREFER project: Work package 2

Part of ISPOR Value & Outcomes Spotlight, p. 19 19-21 21, 2018.

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Farisco, Michele

Filosofía de las Neurociencias.: Cerebro, mente, persona

Ediciones Universidad Catolica de Salta, 2018.

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Farisco, Michele; Hellgren Kotaleski, Jeanette; Evers, Kathinka

Large-scale brain simulation and disorders of consciousness: Mapping technical and conceptual issues

Part of Frontiers in Psychology, 2018.

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Helgesson, Gert; Eriksson, Stefan

Revise the ICMJE Recommendations regarding authorship responsibility!

Part of Learned Publishing, p. 267-269, 2018.

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Hansson, Mats G.; Bouder, Frederic; Howard, Heidi Carmen

Genetics and risk - an exploration of conceptual approaches to genetic risk

Part of Journal of Risk Research, p. 101-108, 2018.

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Reichel, Jane

Offentlighet eller dataskydd som ledande princip i EU:s integrerade förvaltning?

Part of Förvaltningsrättslig Tidskrift, p. 91-113, 2018.

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Klingström, Tomas; Bongcam Rudloff, Erik; Reichel, Jane

Legal & ethical compliance when sharing biospecimen

Part of Briefings in Functional Genomics & Proteomics, p. 1-7, 2018.

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Howard, H.C.; Iwarsson, E

Mapping Uncertainty in Genomics

Part of Journal or Risk Research, p. 117 117-128 128, 2018.

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Howard, Heidi Carmen; van El, Carla G.; Forzano, Francesca; Radojkovic, D. et al.

One small edit for humans, one giant edit for humankind? Points and questions to consider for a responsible way forward for gene editing in humans

Part of European Journal of Human Genetics, p. 1-11, 2018.

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Niemiec, E.; Vears, D. F.; Borry, P.; Howard, Heidi Carmen et al.

Readability of informed consent forms for whole-exome and whole-genome sequencing

Part of Journal of Community Genetics, p. 143-151, 2018.

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Howard, Heidi Carmen; Mascalzoni, Deborah; Mabile, Laurence; Houeland, Gry et al.

How to responsibly acknowledge research work in the era of big data and biobanks: ethical aspects of the Bioresource Research Impact Factor (BRIF).

Part of Journal of Community Genetics, p. 169-176, 2018.

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De Wert, G.; Heindryckx, B.; Pennings, G.; Clarke, A. et al.

Responsible innovation in human germline gene editing: Background document to the recommendations of ESHG and ESHRE

Part of European Journal of Human Genetics, p. 450-470, 2018.

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de Wert, Guido; Pennings, Guido; Clarke, Angus; Eichenlaub-Ritter, Ursula et al.

Human germline gene editing: Recommendations of ESHG and ESHRE

Part of European Journal of Human Genetics, p. 445-449, 2018.

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Borry, Pascal; Bentzen, Heidi Beate; Budin-Ljøsne, Isabelle; Cornel, Martina C et al.

The challenges of the expanded availability of genomic information: an agenda-setting paper.

Part of Journal of Community Genetics, p. 103-116, 2018.

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Eriksson, Stefan; Godskesen, Tove; Andersson, Lars; Helgesson, Gert et al.

How to counter undeserving authorship

Part of Insights: the UKSG journal, p. 1 1-6 6, 2018.

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Bayliss, Kerin; Raza, Karim; Simons, Gwenda; Falahee, Marie et al.

Perceptions of predictive testing for those at risk of developing a chronic inflammatory disease: a meta-synthesis of qualitative studies

Part of Journal of Risk Research, p. 167-189, 2018.

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Howard, Heidi Carmen; Iwarsson, Erik

Mapping uncertainty in genomics

Part of Journal of Risk Research, p. 117-128, 2018.

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Höglund, Anna; Carlsson, Marianne; Holmström, Inger; Lännerström, Linda et al.

From denial to awareness: a conceptual model for obtaining equity in healthcare

Part of International Journal for Equity in Health, 2018.

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