Staunton, Ciara; Slokenberga, Santa; Mascalzoni, Deborah

The GDPR and the research exemption: considerations on the necessary safeguards for research biobanks

Part of European Journal of Human Genetics, p. 1159-1167, 2019.

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Salles, Arleen; Evers, Kathinka; Farisco, Michele

The Need for a Conceptual Expansion of Neuroethics

Part of AJOB Neuroscience, p. 126-128, 2019.

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Soulier, Alexandra

Reconsidering Dynamic Consent in Biobanking Ethical and Political Consequences of Transforming Research Participants into ICT Users

Part of IEEE technology & society magazine, p. 62-70, 2019.

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Pennartz, Cyriel; Farisco, Michele; Evers, Kathinka

Indicators and Criteria of Consciousness in Animals and Intelligent Machines: An Inside-Out Approach

Part of Frontiers in Systems Neuroscience, 2019.

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Fernow, Josepine; de Miguel Beriain, Inigo; Brey, Philip; Stahl, Berndt et al.

Setting future ethical standards for ICT, Big Data, AI and robotics: The contribution of three European projects

Part of Orbit Journal, 2019.

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Guerrero, Manuel; Del Villar, María Soledad; Hau, Boris; Johansson, María Teresa et al.

Professions and Profiles: Epistemic Communities and the Registration of Human Rights Violations

Part of Resistance to Political Violence in Latin America, p. 79-115, 2019.

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Northoff, Georg; Wainio-Theberge, Soren; Evers, Kathinka

Is temporo-spatial dynamics the “common currency” of brain and mind?: In Quest of “Spatiotemporal Neuroscience”

Part of Physics of Life Reviews, 2019.

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Janssens, Rosanne; Russo, Selena; van Overbeeke, Eline; Whichello, Chiara et al.

Patient Preferences in the Medical Product Life Cycle: What do Stakeholders Think? Semi-Structured Qualitative Interviews in Europe and the USA

Part of Patient, 2019.

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Viberg Johansson, Jennifer; Langenskiöld, Sophie; Segerdahl, Pär; Hansson, Mats G et al.

Research participants' preferences for receiving genetic risk information: a discrete choice experiment.

Part of Genetics in Medicine, 2019.

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Larrivee, Denis; Farisco, Michele

Realigning the Neural Paradigm for Death

Part of Journal of Bioethical Inquiry, 2019.

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Grauman, Åsa; Hansson, Mats G.; Puranen, Arvid; James, Stefan et al.

Short-term mental distress in research participants after receiving cardiovascular risk information

Part of PLoS ONE, 2019.

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Godskesen, Tove E.; Eriksson, Stefan

Selektiv rapportering av kliniska prövningar

Part of Dagens Medicin, 2019.

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Rejnö, Åsa; Ternestedt, Britt-Marie; Lennart, Nordenfelt; Silfverberg, Gunilla et al.

Dignity at stake: Caring for persons with impaired autonomy

Part of Nursing Ethics, p. 1-14, 2019.

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Slokenberga, Santa; Reichel, Jane; Niringiye, Rachel; Croxton, Talishiea et al.

EU data transfer rules and African legal realities: is data exchange for biobank research realistic?

Part of International Data Privacy Law, p. 30-48, 2019.

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Slokenberga, Santa; Howard, Heidi Carmen

THE RIGHT TO SCIENCE AND HUMAN GERMLINE EDITING. Sweden, its external commitments and the ambiguous national responses under the Genetic Integrity Act

Part of Förvaltningsrättslig Tidskrift, p. 199-222, 2019.

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Russo, Selena; Jongerius, Chiara; Faccio, Flavia; Pizzoli, Silvia F.M. et al.

Understanding Patients' Preferences: A Systematic Review of Psychological Instruments Used in Patients' Preference and Decision Studies

Part of Value in Health, p. 491-501, 2019.

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Dal-Ré, Rafael; Avendaño-Solà, Cristina; Bloechl-Daum, Brigitte; de Boer, Anthonius et al.

Low risk pragmatic trials do not always require participants' informed consent

Part of BMJ. British Medical Journal, 2019.

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Grauman, Åsa; Hansson, Mats G.; James, Stefan K; Veldwijk, Jorien et al.

Exploring research participants' perceptions of cardiovascular risk information-Room for improvement and empowerment

Part of Patient Education and Counseling, p. 1528-1534, 2019.

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Stahl, Bernd Carsten; Akintoye, Simisola; Fothergill, Tyr; Guerrero, Manuel et al.

Beyond Research Ethics: Dialogues in Neuro-ICT Research

Part of Frontiers in Human Neuroscience, 2019.

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Carrieri, Daniele; Howard, Heidi Carmen; Clarke, Angus J.; Stefansdottir, Vigdis et al.

Reply to Bombard and Mighton

Part of European Journal of Human Genetics, p. 507-508, 2019.

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Mascalzoni, Deborah; Bentzen, Heidi Beate; Budin-Ljosne, Isabelle; Bygrave, Lee Andrew et al.

Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?

Part of Annals of Internal Medicine, p. 332-334, 2019.

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Ballantyne, Angela; Eriksson, Stefan

Research ethics revised: The new CIOMS guidelines and the World Medical Association Declaration of Helsinki in context

Part of Bioethics, p. 310-311, 2019.

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Middleton, Anna; Milne, Richard; Thorogood, Adrian; Kleiderman, Erika et al.

Attitudes of publics who are unwilling to donate DNA data for research.

Part of European Journal of Medical Genetics, p. 316-323, 2019.

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Helgesson, Gert; Bülow, William; Eriksson, Stefan; Godskesen, Tove et al.

Should the deceased be listed as authors?

Part of Journal of Medical Ethics, p. 331-338, 2019.

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Cornel, Martina C.; Howard, Heidi Carmen; Lim, Daniel; Bonham, Vence L. et al.

Moving towards a cure in genetics: what is needed to bring somatic gene therapy to the clinic?

Part of European Journal of Human Genetics, p. 484-487, 2019.

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Veldwijk, Jorien; Groothuis-Oudshoorn, Catharina G. M.; Kihlbom, Ulrik; Langenskiöld, Sophie et al.

How psychological distance of a study sample in discrete choice experiments affects preference measurement: a colorectal cancer screening case study

Part of Patient Preference and Adherence, p. 273-282, 2019.

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Carrieri, Daniele; Howard, Heidi Carmen; Benjamin, Caroline; Clarke, Angus J. et al.

Recontacting patients in clinical genetics services: recommendations of the European Society of Human Genetics

Part of European Journal of Human Genetics, p. 169-182, 2019.

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Witt, Stefanie; Escherich, Gabriele; Rutkowski, Stefan; Kappelhoff, Gerhard et al.

Exploring the Potential of a Pretend Play Intervention in Young Patients With Leukemia

Part of Journal of Pediatric Nursing, p. E98-E106, 2019.

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Salles, Arleen; Bjaalie, Jan; Evers, Kathinka; Farisco, Michele et al.

The Human Brain Project: Responsible Brain Research for the Benefit of Society

Part of Neuron, p. 380-384, 2019.

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Matar, Amal

Considering a Baby? Responsible Screening for the Future: Ethical and social implications for implementation and use of preconception expanded carrier screening in Sweden

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Matar, Amal; Hansson, Mats G.; Höglund, Anna T

Values and value conflicts in implementation and use of preconception expanded carrier screening: an expert interview study

Part of BMC Medical Ethics, 2019.

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Schölin Bywall, Karin; Veldwijk, Jorien; Hansson, Mats G.; Kihlbom, Ulrik et al.

Patient Perspectives on the Value of Patient Preference Information in Regulatory Decision Making: A Qualitative Study in Swedish Patients with Rheumatoid Arthritis

Part of Patient, p. 297-305, 2019.

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Matar, Amal; Hansson, Mats G.; Höglund, Anna T.

"A perfect society": Swedish policymakers' ethical and social views on preconception expanded carrier screening

Part of Journal of Community Genetics, p. 267-280, 2019.

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Helgesson, Gert; Eriksson, Stefan

Authorship Order

Part of Learned Publishing, p. 106-112, 2019.

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Farisco, Michele

Ritorno alla Physis

Part of Etica & Politica / Ethics & Politics, p. 487-496, 2018.

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Skogeland, Ulrika; de Monestrol, Isabelle; Godskesen, Tove E.

WS18 Waiting for lung transplant, manifold experiences: a literature review

Part of WS18 Waiting for lung transplant, manifold experiences: a literature review, p. S33-, 2018.

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Bjelobaba, Sonja

Academic Integrity Skill Development amongst the Faculty at a Swedish University

Part of Towards Consistency and Transparency in Academic Integrity, p. 131-146, 2018.

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Slokenberga, Santa

Biobanking between the EU and Third Countries - Can Data Sharing Be Facilitated via Soft Regulatory Tools?

Part of European Journal of Health Law, p. 517-536, 2018.

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Spörndly, Robert; Eriksson, Stefan; Godskesen, Tove E.

Representation of Ethnic Minorities in Swedish Clinical Cancer Trials: A Qualitative Study of Physicians' Experiences

Part of Harvard Public Health Review, p. 1 1-10 10, 2018.

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Renzi, Chiara; Provencal, Nadine; Bassil, Katherine C; Evers, Kathinka et al.

From Epigenetic Associations to Biological and Psychosocial Explanations in Mental Health.

Part of Progress in Molecular Biology and Translational Science, p. 299-323, 2018.

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Skogeland, Ulrika; de Monestrol, Isabelle; Godskesen, Tove E.

Experiences of Individuals Awaiting Lung Transplantation

Part of Respiratory care, p. 1535-1540, 2018.

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Vears, Danya F.; Niemiec, Emilia; Howard, Heidi Carmen; Borry, Pascal et al.

Analysis of VUS reporting, variant reinterpretation and recontact policies in clinical genomic sequencing consent forms

Part of European Journal of Human Genetics, p. 1743-1751, 2018.

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Gainotti, Sabina; Mascalzoni, Deborah; Bros-Facer, Virginie; Petrini, Carlo et al.

Meeting Patients' Right to the Correct Diagnosis: Ongoing International Initiatives on Undiagnosed Rare Diseases and Ethical and Social Issues

Part of International Journal of Environmental Research and Public Health, 2018.

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Delegates, Global Neuroethics Summit; Rommelfanger, Karen S.; Jeong, Sung-Jin; Ema, Arisa et al.

Neuroethics Questions to Guide Ethical Research in the International Brain Initiatives

Part of Neuron, p. 19-36, 2018.

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Vears, D. F.; Niemiec, Emilia; Howard, Heidi Carmen; Borry, P. et al.

How do consent forms for diagnostic high-throughput sequencing address unsolicited and secondary findings?: A content analysis

Part of Clinical Genetics, p. 321-329, 2018.

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Samuel, Gabrielle; Howard, Heidi Carmen; Cornel, Martina; van El, Carla et al.

A response to the forensic genetics policy initiative's report "Establishing Best Practice for Forensic DNA Databases"

Part of Forensic Science International, p. E19-E21, 2018.

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Kodra, Yllka; Weinbach, Jerome; Posada-de-la-Paz, Manuel; Coi, Alessio et al.

Recommendations for Improving the Quality of Rare Disease Registries

Part of International Journal of Environmental Research and Public Health, 2018.

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Whichello, Chiara; Schölin Bywall, Karin; Mauer, Jonathan; Watt, Stephen J. et al.

Mapping benefit-risk decision-making processes and identifying decision points with the potential to include patient preference information throughout the medical product lifecycle

Part of Pharmacoepidemiology and Drug Safety, p. 206-206, 2018.

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Whichello, Chiara; Soekhai, Vikas; Levitan, Bennett; Veldwijk, Jorien et al.

Compendium of methods for measuring patient preferences in medical treatment

Part of Pharmacoepidemiology and Drug Safety, p. 517-518, 2018.

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Kihlbom, Ulrik; Russo, Selena; Monzani, Dario; Stichele, Geert Vander et al.

Patient-centered benefit-risk decision-making and the role of educational tools and psychological instruments in preference elicitation-Year 1 of IMI prefer

Part of Pharmacoepidemiology and Drug Safety, p. 512-512, 2018.

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