We investigate the ethical, philosophical and legal aspects of biomedical research and clinical practice and publish the results of our research in international peer-reviewed scientific journals and in books.
CRB is a multi-disciplinary research environment and our research topics originate from close collaborations with clinicians, researchers and scientists outside the centre. We work with clinical ethics, with a special focus on nursing ethics and the ethics of care. We are also involved in research ethics, where we have been working with the ethical and legal issues of biobank and registry research for over a decade and more recently started looking at how we should handle risk information. We are also working on other types of bioethics research, especially neuroethics and neurophilosophy, where we are developing a 'fundamental' neuroethics.
Publications from CRB
- Hantering av oredlighet i forskning: Kan förväntningar på en ny modell uppfyllas?. 2017
- The relevance of neuroscience for conceptualizing human nature. 2016
- Giving Patients’ Preferences a Voice in Medical Treatment Life Cycle: The PREFER Public–Private Project. 2017
- The false academy: Predatory publishing in science & bioethics. 2016
- Dynamic Consent: a potential solution to some of the challenges of modern biomedical research. 2017
- Anxiety delivered direct-to-consumer: are we asking the right questions about the impacts of DTC genetic testing?. 2016
- Residential area and physical activity: A multi-level study of 68,000 adults in Stockholm County. 2017
- Neuroscience of Childhood Poverty: Evidence of Impacts and Mechanisms as Vehicles of Dialog With Ethics. 2017
- Nursing students' awareness of inequity in healthcare - An intersectional perspective. 2017
- Content Analysis of Informed Consent for Whole Genome Sequencing Offered by Direct-to-Consumer Genetic Testing Companies. 2016
- Proactive epigenesis and ethical innovation. 2016
- The risk of re-identification versus the need to identify individuals in rare disease research. 2016
- Alternative Rule-Making within European Bioethics - Necessary and Therefore Legitimate?. 2016
- Let the Individuals Directly Concerned Decide: A Solution to Tragic Choices in Genetic Risk Information. 2016
- Neurotechnological assessment of consciousness disorders: five ethical imperatives. 2016
- Proactive epigenesis and ethical innovation: A neuronal hypothesis for the genesis of ethical rules. 2016
- The contribution of neuroethics to international brain research initiatives. 2016
- Valuing Child Health Utility 9D Health States with Young Adults: Insights from a Time Trade Off Study. 2015
- Children with cancer share their views: tell the truth but leave room for hope. 2016
- Impact of telephone nursing education program for equity in health. 2016
- Swedish parents’ interest in preconception genetic carrier screening. 2016
- Ethical Issues in Preconception Genetic Carrier Screening. 2016
- Perceptions of risk and predictive testing held by the first-degree relatives of patients with rheumatoid arthritis in England, Austria and Germany: a qualitative study. 2016
- Physicians’ experiences of do-not-resuscitate (DNR) orders in hematology and oncology care – a qualitative study. 2016
- Bereaved Siblings' Advice to Health Care Professionals Working With Children With Cancer and Their Families. 2016
- Challenges and opportunities for ELSI early career researchers. 2016
- Responsible implementation of expanded carrier screening. 2016
- The Differential Earnings and Income Effects of Involuntary Job Loss on Workers with Disabilities: Evidence from Sweden. 2016
- Developing ethical competence in healthcare management. 2016
- Higher cardiogenic potential of iPSCs derived from cardiac versus skin stromal cells.. 2016
Biobanks and registries in research
We aim for a biobank and registry management that satisfies ethical and legal demands from the research community, the public and the individual.
We are investigating risk information from serval perspectives.
the Ethics Blog
Source: Pär Segerdahl 2017-04-18
Sliding down along the slippery slope
Source: Pär Segerdahl 2017-04-11
The New Yorker features resignation syndrome
Source: Pär Segerdahl 2017-03-29
Consent based on trust rather than information?
Source: Pär Segerdahl 2017-03-21
More biobank ethics and law
Source: Josepine Fernow 2017-03-13
Stem cells: unique biobank material?
Source: Pär Segerdahl 2017-03-07
Stem cell therapy remains a form of treatment
Source: Pär Segerdahl 2017-02-27
Commercialization, but not at any price
Source: Pär Segerdahl 2017-02-14
Not just facts, ideas are also needed
Source: Pär Segerdahl 2017-02-08
How should we think about it?
Source: Pär Segerdahl 2017-01-24
Caring for patients
Nurses encounter ethical dilemmas in their daily work. But there are also moral dimensions to nursing practice.
Neuroethics & Neurophilsophy
Any attempt at understanding how the mind and the brain work comes with a set of philosophical, ethical and social issues.