Risks are often difficult to interpret and communicating risk information is challenging. How people perceive risk depends on several factors, like their education and health literacy. Despite this, we have to take decisions based on risk information all the time.
Lay people, patients, policy makers and health care professionals have to value risk information to decide whether or not to use certain medical treatments, preventive interventions or technology. So in the end, risks concern all of us and it is crucial that risks are communicated clearly to the entire population.
Our research is multi-disciplinary and we use methods from health economy, mainly discrete choice experiments (DCE), and best-worst scaling to capture the complexities of people’s preferences, adding different perspectives to our expertise on risk communicaiton and medical decision making:
Currently, we are looking at the health related decisions that individuals make where they have to interpret difficult concepts and understand risk. This is hard, especially when probabilities become very small. Our research deals with the management of genetic risk information, whether researchers should disclose incidental findings in biobank research, arthritis risk communication, antibiotic resistance, cardiovascular risk communication in primary care, and people's preferences and perceptions when it comes to risk for heart and lung disease.
Managing genetic risk information
Research generates huge amounts of genetic information. How should we handle it? That is what we are trying to find out in a large international research project.
Arthritis risk communication
Euro-TEAM is a 7th framework programme aiming towards early diagnosis and biomarker validation in arthritis management. We are working with risk communication.
Handling incidental findings
How should we handle incidental findings in biobank and -omics research? Jennifer Viberg Johansson is looking at the arguments for and against disclosure of incidental findings.
Communicating risk for heart disease
Sofia Lavén is studying cardiovascular risk communication in primary care and how general practitioners value and communicate lifestyle and genetic risk factors.
Cardiopulmonary risk communication
We study how research participants and patients perceive risk for heart and lung disease. And what they want to know.
Mirko Ancillotti is looking at antibiotics resistance and the ethical aspects of using peptide-based antibiotics.
Preconception genetic screening
Amal Matar is looking at the ethical issues of preconception genetic testing and screening, taking the family’s and the individual's perspective into account.
Citizen health in genomics
We are part of CHIP ME, a community of researchers and stakeholders to promote public-private initiatives in public health genomics.
Your DNA Your SAy
>> Tell us what you think
This is a film-survey experience on DNA and medical data sharing.