Centre for Research Ethics & Bioethics (CRB)

Joanna Stjernschantz Forsberg

Joanna Stjernschantz Forsberg, Associated Researcher

Joanna Stjernschantz Forsberg

Associated Researcher

Joanna Stjernschantz Forsberg is an associated researcher. She defended her PhD thesis on biobank research (individual rights and public benefit) on October 6, 2012. She started her PhD studies in bioethics in 2007. She holds a degree in Medicine from Uppsala University (1998) and a license to practice (2002). Her main area of research was the relationship between rights and duties of individuals and society in healthcare and medical research, in particular in biobank based research and public health ethics.

E-mail: joanna.forsberg@crb.uu.se

Biobank and registry ethics & law

For many years, researchers at CRB have provided constructive advise on how to deal with ethical and legal aspects of research using human tissue material and personal data. We have collaborated with biomedical scientists and published our findings in peer reviewed journals. As a summary of this research we have compiled a list of publications with abstracts. We have grouped them thematically to help you find the ones you might be interested in reading. Our publications deal with ethical frameworks and policy, regulatory aspects of biobank and registry research, informed consent, ethical review, integrity concerns, trust, genetic testing, indicental findings, commercialization, public and patient perceptions, rare diseases, children & biobanks & genetics, and biobank studies.

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Biobank and registry ethics & law, report