Emilia Niemiec

Emilia Niemic, Postcdoc researcher: Photo: Marc Folland. (c) Wellcome Trust Sanger Institute

Emilia Niemiec

Postdoc researcher

Emilia Niemiec investigates ethical, legal and social implications of genomics in SIENNA project. She is a post-doc at the Centre for Research Ethics & Bioethics. During her PhD (Erasmus Plus PhD Programme in Law, Science and Technology) she studied ethical and legal issues of whole genome sequencing. She conducted the first empirical study of direct-to-consumer offer of whole genome sequencing. Emilia holds degrees in Bioethics (MSc, University of Leuven) and Biotechnology (MEng, Warsaw University of Life Sciences).

E-mail: niemiec.emilia@gmail.com

Recent publications

  • Vears, Danya F.; Niemiec, Emilia; Howard, Heidi Carmen; Borry, Pascal et al.

    Analysis of VUS reporting, variant reinterpretation and recontact policies in clinical genomic sequencing consent forms

    Part of European Journal of Human Genetics, p. 1743-1751, 2018.

  • Vears, D. F.; Niemiec, Emilia; Howard, Heidi Carmen; Borry, P. et al.

    How do consent forms for diagnostic high-throughput sequencing address unsolicited and secondary findings?: A content analysis

    Part of Clinical Genetics, p. 321-329, 2018.

  • Middleton, Anna; Niemiec, Emilia; Prainsack, Barbara; Bobe, Jason et al.

    'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods

    Part of Personalized Medicine, p. 311-318, 2018.

    Open access
  • Niemiec, Emilia; Kalokairinou, Louiza; Howard, Heidi Carmen

    Current ethical and legal issues in health-related direct-to-consumer genetic testing

    Part of Personalized Medicine, p. 433-445, 2017.

    Open access