Emilia Niemiec investigates ethical, legal and social implications of genomics in SIENNA project. She is a post-doc at the Centre for Research Ethics & Bioethics. During her PhD (Erasmus Plus PhD Programme in Law, Science and Technology) she studied ethical and legal issues of whole genome sequencing. She conducted the first empirical study of direct-to-consumer offer of whole genome sequencing. Emilia holds degrees in Bioethics (MSc, University of Leuven) and Biotechnology (MEng, Warsaw University of Life Sciences).
Technology, ethics and human rights
Genomics, Enhancement, AI & Robotics
The SIENNA project will address ethical issues in three new and emerging areas with major socio-economic impact.
News from the SIENNA project
- Call for papers on Ethics by Design: Deadline extended to July 1 2019-06-26
- Public opinion surveys and panels complete! 2019-05-08
- Stakeholder and expert input to SIENNA's ethical analysis 2019-04-09
- Call for papers: Ethics and Human Rights in Smart Information Systems 2019-01-23
- Season's greetings from SIENNA 2018-12-21
- Stakeholder input to SIENNA: Foresight 2018-12-21
- Embedded EthiCS postdoc opportunity at Harvard University 2018-12-14
- Collecting stakeholder input on legal aspects of Genomics, Human Enhancement, AI & Robotics 2018-11-08
- Law Disrupted, Law Re-Imagined, Law Re-Invented 2018-11-06
- SIENNA - soon in your langauge! 2018-07-05
- The SIENNA project in Spanish 2018-06-26
- Fostering cooperation and finding synergies 2018-06-11
- Brazilian perspectives on ethics and new technology 2018-03-09
- ETHICS BLOG: Ethics, human rights and responsible innovation 2017-10-31
- SIENNA: Preparing the ground for responsible innovation 2017-10-19
- SIENNA project kicks off 2017-10-10
- European funding for research on ethical and legal aspects of new technologies 2017-04-28
Your DNA Your SAy
>> Tell us what you think
This is a film-survey experience on DNA and medical data sharing.
Ethical, legal and social issues of gene editing
Gene editing technology pushes genetics beyond diagnostic testing and into the realm of treatment. We address the ethical, legal and social issues associated.
Attitudes of publics who are unwilling to donate DNA data for research.
Part of European Journal of Medical Genetics, p. 316-323, 2019.
Consenting Patients to Genome Sequencing
Part of Clinical Genome Sequencing: Psychological Considerations, 2019.
Proteomic and transcriptomic experiments reveal an essential role of RNA degradosome complexes in shaping the transcriptome of Mycobacterium tuberculosis.
Part of Nucleic Acids Research, 2019.
Analysis of VUS reporting, variant reinterpretation and recontact policies in clinical genomic sequencing consent forms
Part of European Journal of Human Genetics, p. 1743-1751, 2018.
How do consent forms for diagnostic high-throughput sequencing address unsolicited and secondary findings?: A content analysis
Part of Clinical Genetics, p. 321-329, 2018.
Readability of informed consent forms for whole-exome and whole-genome sequencing
Part of Journal of Community Genetics, p. 143-151, 2018.
'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods
Part of Personalized Medicine, p. 311-318, 2018.
Current ethical and legal issues in health-related direct-to-consumer genetic testing
Part of Personalized Medicine, p. 433-445, 2017.
Content Analysis of Informed Consent for Whole Genome Sequencing Offered by Direct-to-Consumer Genetic Testing Companies
Part of Human Mutation, p. 1248-1256, 2016.
Ethical issues in consumer genome sequencing: Use of consumers' samples and data
Part of Applied and Translational Genomics, p. 23 23-30 30, 2016.