Mind the Risk: Managing genetic risk information
Biomedical research is constantly finding new ways to detect genetic variation and link the findings to diseases and to the effects of various drug treatments. The amount of information that it produces keeps increasing, but we are still not sure how to manage it.
There are pressing ethical concerns and a need to improve clinical practice. Mind the Risk is an international, multi-disciplinary research projet that runs over six years. Together, we will provide philosophical and conceptual framework that together with historical and socio-cultural analyses of concerns about risk information, empirical investigations of risk perceptions and preferences and ethical analyses may guide regulation and management of genetic and related risk information in various settings.
We are working to
- Develop a conceptual framework for genetic risk information and management.
- Assess perceptions and evaluations of genetic risks in different stakeholder groups
- Assess the ethical, psychological and social implications of the provision of risk information from genetic and related technologies.
- Explore new forms of communication and information, and develop tools to improve communication skills regarding genetic risk information
About Mind the Risk
Mind the Risk is a six year international network collaboration with scientists and researchers from Uppsala, Birmingham, Göttingen, Manchester, Milano and Stockholm funded by Riksbankens Jubileumsfond (The Swedish Foundation for Humanities and Social Sciences)
How precise should stratified medicine be?
The Manchester-based Mind The Risk research team have designed a model to help researchers understand how prescribing-algorithms to guide treatment with biologics in rheumatoid arthritis (RA) are valued by users (patients or potential patients).
Mind the Risk: Final conference 29 November 2019
How do humans respond to genetic risk information? Is it always good to know? How can you avoid raising unnecessary concerns about what the future holds? These questions, and others, have been investigated by the Mind the Risk project, an international multidisciplinary research team for six years. Together with the national genomics infrastructire, Genomic Medicine Sweden, the Mind the Risk project invites you to a conference to present the genomics research and the results of the project, and discuss benefits and risks together with different actors.
WHEN: 29 November
WHERE: Clarion Hotel Gillet, Uppsala
Mind the Risk | Attitudes to genetic testing
Mind the Risk | Risk of Rheumatoid Arthritis
Mind the Risk | How do people feel about genetic testing?
Mind the Risk | Making sense of genetic risk
Mind the Risk | What people think about online genetic testing