Publications from CRB

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We publish the results of our research in international peer-reviewed scientific journals and in books. Among other things, our research deals with bioethical issues, biobanks and registriesclinical ethicsneuroethics and philosophyrisk informationnursing ethics, ethics of care and research ethics and law

More publication lists are avaliable on our staff pages. You can also download recent policy briefs from CRB, or read about our research on the Ethics Blog

Recent publications

  • Holmström, Inger K; Kaminsky, Elenor; Höglund, Anna T

    A survey of nursing teachers’ awareness of discrimination and inequity in telephone nursing care

    Part of BMC Nursing, 2021.

  • Svalastog, Anna Lydia; Wilson, Shawn; Hansen, Ketil Lenert

    Knowledge versus Education in the Margins: An Indigenous and Feminist Critique of Education

    Part of Education Sciences, 2021.

    Open access
  • Gupta, Anvita; Wolff, Annemarie; Northoff, Georg

    Extending the "resting state hypothesis of depression"-dynamics and topography of abnormal rest-task modulation

    Part of Psychiatry Research, 2021.

  • Shah, N.; Viberg Johansson, Jennifer; Haraldsdóttir, E.; Bentzen, H.B. et al.

    Governing health data across changing contexts: A focus group study of citizen’s views in England, Iceland, and Sweden

    Part of International Journal of Medical Informatics, 2021.

    Open access
  • Viberg, Jennifer; Shah, Nisha; Haraldsdóttir, Eik; Bentzen, Heidi Beate et al.

    Governance mechanisms for sharing of health data: An approach towards selecting attributes for complex discrete choice experiment studies

    Part of Technology in society, p. 101625-101625, 2021.

    Open access
  • Schölin Bywall, Karin; Esbensen, Bente Appel; Lason, Marta; Heidenvall, Marie et al.

    Functional capacity vs side effects: treatment attributes to consider when individualising treatment for patients with rheumatoid arthritis

    Part of Clinical Rheumatology, 2021.

  • Viberg Johansson, Jennifer; Bentzen, Heidi Beate; Shah, Nisha; Haraldsdottir, Eik et al.

    Preferences of the Public for Sharing Health Data: Discrete Choice Experiment

    Part of JMIR MEDICAL INFORMATICS, 2021.

    Open access
  • Grauman, Åsa; Hansson, Mats G.; James, Stefan; Hauber, Brett et al.

    Communicating Test Results from a General Health Check: Preferences from a Discrete Choice Experiment Survey

    Part of Patient, p. 649-660, 2021.

    Open access
  • Mascalzoni, Deborah; Biasiotto, Roberta; Borsche, Max; Brüggemann, Norbert et al.

    Balancing scientific interests and the rights of participants in designing a recall by genotype study

    Part of European Journal of Human Genetics, p. 1146-1157, 2021.

    Open access
  • Melotti, Roberto; Scaggiante, Federica; Falciani, Michela; Weichenberger, Christian X. et al.

    Prevalence and determinants of serum antibodies to SARS-CoV-2 in the general population of the Gardena valley

    Part of Epidemiology and Infection, 2021.

    Open access
  • Godskesen, Tove; Höglund T., Anna; Frygner Holm, Sara; Eriksson, Stefan

    YouTube as a source of information on clinical trials forpaediatric cancer

    Part of Information, Communication and Society, p. 1-14, 2021.

  • Stahl, Bernd Carsten; Akintoye, Simisola; Bitsch, Lise; Bringedal, Berit et al.

    From Responsible Research and Innovation to responsibility by design

    Part of Journal of Responsible Innovation, 2021.

    Open access
  • Andersson, Christina; Bergsten, Katja; Lilliengren, Peter; Norbäck, Kajsa et al.

    The effectiveness of smartphone compassion training on stress among Swedish university students: A pilot randomized trial

    Part of Journal of Clinical Psychology, p. 927-945, 2021.

  • Damiani, Stefano; Scalabrini, Andrea; Ku, Hsiao-Lun; Lane, Timothy Joseph et al.

    From local to global and back: An exploratory study on cross-scale desynchronization in schizophrenia and its relation to thought disorders

    Part of Schizophrenia Research, p. 10-12, 2021.

  • Prasuhn, Jannik; Borsche, Max; Hicks, Andrew A.; Goegele, Martin et al.

    Task matters-challenging the motor system allows distinguishing unaffected Parkin mutation carriers from mutation-free controls

    Part of Parkinsonism & Related Disorders, p. 101-104, 2021.

  • Bjelobaba, Sonja

    Deterring cheating using a complex assessment design: A case study

    Part of The Literacy Trek. Journal of literacy and language studies, p. 55-77, 2021.

    Open access
  • Milne, Richard; Morley, Katherine I.; Almarri, Mohamed A.; Anwer, Shamim et al.

    Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries

    Part of Genome Medicine, 2021.

    Open access
  • Grauman, Åsa

    Policyrekommendationer: Informera om risk för hjärt- och kärlsjukdomar

    2021.

    Open access
  • Russo, Selena; Monzani, Dario; Pinto, Cathy Anne; Vergani, Laura et al.

    Taking into Account Patient Preferences: A Consensus Study on the Assessment of Psychological Dimensions Within Patient Preference Studies

    Part of Patient Preference and Adherence, p. 1331-1345, 2021.

    Open access
  • Biasiotto, Roberta; Pramstaller, Peter P.; Mascalzoni, Deborah

    The dynamic consent of the Cooperative Health Research in South Tyrol (CHRIS) study: broad aim within specific oversight and communication

    Part of BIOLAW JOURNAL-RIVISTA DI BIODIRITTO, p. 277-287, 2021.

    Open access
  • Steindal, Simen A; Nes, Andréa Aparecida Gonçalves; Godskesen, Tove; Lind, Susanne et al.

    Advantages and Challenges in Using Telehealth for Home-Based Palliative Care: Protocol for a Systematic Mixed Studies Review

    Part of JMIR Research Protocols, 2021.

  • Khan, Zeenath Reza; Dyer, Jarret; Bjelobaba, Sonja; Gomes, Sandra F. et al.

    Initiating count down-gamification of academic integrity

    Part of International Journal for Educational Integrity, 2021.

    Open access
  • Hofmann, Robin; Abebe, Tamrat Befekadu; Herlitz, Johan; James, Stefan et al.

    Routine Oxygen Therapy Does Not Improve Health-Related Quality of Life in Patients With Acute Myocardial Infarction-Insights From the Randomized DETO2X-AMI Trial

    Part of Frontiers in Cardiovascular Medicine, 2021.

    Open access
  • Falahee, Marie; Simons, Gwenda; DiSantostefano, Rachael; Valor Méndez, Larissa et al.

    Treatment preferences for preventive interventions for rheumatoid arthritis: protocol of a mixed methods case study for the Innovative Medicines Initiative PREFER project

    Part of BMJ Open, 2021.

    Open access
  • Lundin, Emma; Godskesen, Tove E.

    End-of-life care for people with advanced dementia and pain: a qualitative study in Swedish nursing homes

    Part of BMC Nursing, 2021.

    Open access
  • Schölin Bywall, Karin; Veldwijk, Jorien; Hansson, Mats G.; Baecklund, Eva et al.

    Does being exposed to an educational tool influence patient preferences?: The influence of an educational tool on patient preferences assessed by a discrete choice experiment

    Part of Patient Education and Counseling, p. 2577-2585, 2021.

  • Schölin Bywall, Karin

    Getting a Say: Bringing patients’ views on benefit-risk into medical approvals

    Open access
  • Nihlén Fahlquist, Jessica

    Etiska aspekter på riskkommunikation till gravida

    Part of Etik för barnmorskor, 2021.

  • Palmryd, Lena; Rejnö, Åsa; Godskesen, Tove E.

    Integrity at the end of life in the intensive care unit: a qualitative study of nurses’ views

    Part of Annals of Intensive Care, 2021.

    Open access
  • Chandler, Jennifer A.; Cabrera, Laura Y.; Doshi, Paresh; Fecteau, Shirley et al.

    International Legal Approaches to Neurosurgery for Psychiatric Disorders

    Part of Frontiers in Human Neuroscience, 2021.

    Open access
  • Eriksson Dufva, Ylva; Westman, Henrietta; Kihlbom, Ulrik; Sullivan, Patrick F. et al.

    Swedish large-scale schizophrenia study: Why do patients and healthy controls participate?

    Part of Schizophrenia Research, p. 360-366, 2021.

    Open access
  • Ancillotti, Mirko

    Antibiotic Resistance: A Multimethod Investigation of Individual Responsibility and Behaviour

    Open access
  • Ancillotti, Mirko; Nihlén Fahlquist, Jessica; Eriksson, Stefan

    Individual moral responsibility for antibiotic resistance

    Part of Bioethics, 2021.

    Open access
  • Ancillotti, Mirko; Eriksson, Stefan; Godskesen, Tove; Andersson, Dan I. et al.

    An Effort Worth Making: A Qualitative Study of How Swedes Respond to Antibiotic Resistance

    Part of Public Health Ethics, p. 1-11, 2021.

    Open access
  • Grauman, Åsa; Hansson, Mats G.; James, Stefan; Hauber, Brett et al.

    Communicating test results from a general health checkup: the public’s preferences from a discrete choice experiment survey

    Part of Patient Related Outcome Measures, 2021.

    Open access
  • Garbrielsson, Sebastian; Eriksson, Stefan; Godskesen, Tove

    Predatory nursing journals: A case study of author prevalence and characteristics

    Part of Nursing Ethics, p. 823-833, 2021.

    Open access
  • Northoff, Georg; Lamme, Victor

    Neural signs and mechanisms of consciousness: Is there a potential convergence of theories of consciousness in sight?

    Part of Neuroscience and Biobehavioral Reviews, p. 568-587, 2020.

  • Jimenez-Moreno, Aura Cecilia; Pinto, Cathy Anne; Levitan, Bennett; Whichello, Chiara et al.

    A study protocol for quantifying patient preferences in neuromuscular disorders: a case study of the IMI PREFER Project [version 1; peer review: 1 approved]

    Part of Wellcome Open Research, 2020.

    Open access
  • Farisco, Michele; Evers, Kathinka; Salles, Arleen

    Towards Establishing Criteria for the Ethical Analysisof Artificial Intelligence

    Part of Science and Engineering Ethics, p. 2413-2425, 2020.

    Open access
  • Niemiec, Emilia

    COVID-19 and misinformation: Is censorship of social media a remedy to the spread of medical misinformation?

    Part of EMBO Reports, 2020.

    Open access
  • Siemaszko, Konrad; Rodrigues, Rowena; Slokenberga, Santa

    D5.6: Recommendations for the enhancement of the existing legal frameworks for genomics, human enhancement, and AI and robotics

    2020.

    Open access
  • Slokenberga, Santa

    Genetiska interventioner inom och utanför hälso- och sjukvården

    Part of Medicinsk rätt, p. 185-200, 2020.

  • Zillén, Kavot; Mattsson, Titti; Slokenberga, Santa

    Vid vägs ände: några nutida och framtida utmaningar för den medicinska rätten

    Part of Medicinsk rätt, p. 277-284, 2020.

  • Zillén, Kavot; Mattsson, Titti; Slokenberga, Santa

    Inledning

    Part of Medicinsk rätt, p. 23-36, 2020.

  • Bjelobaba, Sonja

    Academic Integrity Teacher Training: Preventive Pedagogical Practices on the Course Level

    Part of Integrity in Education for Future Happiness, p. 9-18, 2020.

    Open access
  • Rubinstein, Yaffa R.; Robinson, Peter N.; Gahl, William A.; Avillach, Paul et al.

    The case for open science: rare diseases

    Part of JAMIA Open, p. 472-486, 2020.

    Open access
  • Schölin Bywall, Karin; Kihlbom, Ulrik; Hansson, Mats; Falahee, Marie et al.

    Patient preferences on rheumatoid arthritis second-line treatment: a discrete choice experiment of Swedish patients

    Part of Arthritis Research & Therapy, 2020.

    Open access
  • Ancillotti, Mirko; Eriksson, Stefan; Andersson, Dan I.; Godskesen, Tove et al.

    Preferences regarding antibiotic treatment and the role of antibiotic resistance: a discrete choice experiment

    Part of International Journal of Antimicrobial Agents, 2020.

    Open access
  • Northoff, Georg; Wainio-Theberge, Soren; Evers, Kathinka

    Spatiotemporal neuroscience – what is it and why we need it

    Part of Physics of Life Reviews, p. 78-87, 2020.

    Open access
  • Evers, Kathinka

    The Culture-Bound Brain: Epigenetic proaction revisited

    Part of Theoria, p. 783-800, 2020.

    Open access

Biobank and registry ethics & law

For many years, researchers at CRB have provided constructive advise on how to deal with ethical and legal aspects of research using human tissue material and personal data. We have collaborated with biomedical scientists and published our findings in peer reviewed journals. As a summary of this research we have compiled a list of publications with abstracts. We have grouped them thematically to help you find the ones you might be interested in reading. Our publications deal with ethical frameworks and policy, regulatory aspects of biobank and registry research, informed consent, ethical review, integrity concerns, trust, genetic testing, indicental findings, commercialization, public and patient perceptions, rare diseases, children & biobanks & genetics, and biobank studies.

Download our biobank and registry report

Biobank and registry ethics & law, report cover

Nursing Ethics & Ethics of Care

Nursing ethics is concerned with the moral dimensions of nursing practice while the ethics of care is a normative ethical theory. For many years CRB has developed these fields from different angles. We have used qualitative studies to describe and explore the kinds of ethical dilemmas nurses encounter in their day-to-day work and how they solve them. Other studies have investigated the role of ethical guidelines in the building of ethical competence in nursing practice and in priority setting. In this report, we provide a summary of our research.

Download our Nursing ethics report

Nursing ethics & ethics of care cover

Neuroethics & Philosophy of the Brain

The CRB neuroethics research team is an international, multi-disciplinary group. Our backgrounds allow us to approach these issues from theoretical, philosophical, social, bio-political and clinical perspectives. We collaborate closely with neuroscientists to understand the ethical and philosophical questions that neuroscience brings. In this report, we provide a summary of our research. The report was updated in November 2016. We are planning an update in the autumn 2020. 

Download our Neuroethics report

Neuroethicxs & philosophy of the brain cover
Last modified: 2021-09-24