Publikationer från CRB

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Vi publicerar våra resultat i internationella peer-review tidskrifter och i bokform. Forskningsfrågorna handlar bland annat om bioetikklinisk etikforskningsetik och juridikneuroetik och filosofivård, omvårdnad och riskinformation.

Fler publikationslistor hittar du på våra personalsidor. Du kan också läsa om policyrelevant forskning i våra policy briefs, eller gå till etikbloggen för mer filosofiska reflektioner över forksningsetik och bioetik. 

Våra senaste publikationer

  • Matar, Amal; Silverman, Henry

    Ethical Analysis of Egypt's Law Regulating Clinical Research

    Ingår i Journal of Empirical Research on Human Research Ethics, 2022.

    Open access
  • Eddebo, Johan

    Artificial Intelligence and Imperceptible Governance via Opinion Formation: Reflections on Power and Transparency from a Cross-Disciplinary Encounter

    Ingår i Law, AI and Digitalization, 2022.

  • Viberg, Jennifer; Bentzen, Heidi Beate; Mascalzoni, Deborah

    What ethical approaches are used by scientists when sharing health data?: An interview study

    Ingår i BMC Medical Ethics, 2022.

    Open access
  • Farisco, Michele; Salles, Arleen

    American and European Guidelines on Disorders of Consciousness: Ethical Challenges of Implementation

    Ingår i The journal of head trauma rehabilitation, 2022.

    Open access
  • Staunton, Ciara; Slokenberga, Santa; Parziale, Andrea; Mascalzoni, Deborah

    Appropriate Safeguards and Article 89 of the GDPR: Considerations for Biobank, Databank and Genetic Research

    Ingår i Frontiers in Genetics, 2022.

    Open access
  • Farisco, Michele; Pennartz, Cyriel; Annen, Jitka; Cecconi, Benedetta et al.

    Indicators and criteria of consciousness: ethical implications for the care of behaviourally unresponsive patients

    Ingår i BMC Medical Ethics, 2022.

    Open access
  • Grauman, Åsa; Drevin, Jennifer

    Perceptions on using surplus embryos for the treatment of Parkinson’s disease among the Swedish population: a qualitative study

    Ingår i BMC Medical Ethics, 2022.

    Open access
  • Milne, Richard; Morley, Katherine I.; Almarri, Mohamed A.; Atutornu, Jerome et al.

    Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries

    Ingår i Genetics in Medicine, 2022.

    Open access
  • Simons, Gwenda; Caplan, Joshua; DiSantostefano, Rachael L.; Veldwijk, Jorien et al.

    Systematic review of quantitative preference studies of treatments for rheumatoid arthritis among patients and at-risk populations

    Ingår i Arthritis Research & Therapy, 2022.

    Open access
  • Ancillotti, Mirko; Nilsson, Elin; Nordvall, Anna-Carin; Oljans, Emma

    The Status Quo Problem and the Role of Consumers Against Antimicrobial Resistance

    Ingår i Frontiers in Sustainable Food Systems, 2022.

    Open access
  • Farisco, Michele; Evers, Kathinka; Salles, Arleen

    On the Contribution of Neuroethics to the Ethics and Regulation of Artificial Intelligence

    Ingår i Neuroethics, 2022.

    Open access
  • Grauman, Åsa; Viberg, Jennifer; Falahee, Marie; Veldwijk, Jorien

    Public perceptions of myocardial infarction: Do illness perceptions predict preferences for health check results

    Ingår i Preventive Medicine Reports, s. 101683-101683, 2022.

    Open access
  • Grauman, Åsa; Byberg, Liisa; Veldwijk, Jorien; James, Stefan

    What CVD risk factors predict self-perceived risk of having a myocardial infarction? A cross-sectional study

    Ingår i International Journal of Cardiology Cardiovascular Risk and Prevention, s. 200125-200125, 2022.

    Open access
  • Nordvall, Anna-Carin; Ancillotti, Mirko

    Consumer Behaviour and antibiotic resistance

    Ingår i Managing Antimicrobial Resistance Through Behaviour Change, s. 16-19, 2021.

  • Ancillotti, Mirko; Oljans, Emma; Hassan, Tazrin; Horikx, Lotte et al.

    Consumer behaviour and antibiotic resistance

    Ingår i Managing Antimicrobial Resistance Through Behavior Change, March 2021, s. 13-14, 2021.

  • Romano, Virginia; Milne, Richard; Mascalzoni, Deborah

    Italian public's views on sharing genetic information and medical information: findings from the ‘Your DNA, Your Say’ study

    Ingår i Wellcome Open Research, 2021.

    Open access
  • Iacomussi, Sofia; Casareto, Lorena; Locatelli, Manuela; Wang, Chiuhui Mary et al.

    Governance of Access in Biobanking: The Case of Telethon Network of Genetic Biobanks

    Ingår i Biopreservation and Biobanking, s. 483-492, 2021.

    Open access
  • Pattaro, Cristian; Barbieri, Giulia; Foco, Luisa; Weichenberger, Christian X. et al.

    Prospective epidemiological, molecular, and genetic characterization of a novel coronavirus disease in the Val Venosta/Vinschgau: the CHRIS COVID-19 study protocol

    Ingår i Pathogens and Global Health, s. 128-136, 2021.

    Open access
  • Staunton, Ciara; Kösters, Maria; Pramstaller, Peter P.; Mascalzoni, Deborah

    Return of research results (RoRR) to the healthy CHRIS cohort: designing a policy with the participants

    Ingår i Journal of Community Genetics, s. 577-592, 2021.

    Open access
  • Salles, Arleen

    Humanness: Some neuroethical reflections

    Ingår i Regulating Neuroscience: Transnational legal challenges, s. 1-179, 2021.

  • Evers, Kathinka; Salles, Arleen

    Epistemic Challenges of Digital Twins & Virtual Brains: Perspectives from Fundamental Neuroethics

    Ingår i SCIO: Revista de Filosofía, s. 27-53, 2021.

    Open access
  • Stahl, Bernd Carsten; Akintoye, Simisola; Bitsch, Lise; Bringedal, Berit et al.

    From Responsible Research and Innovation to responsibility by design

    Ingår i Journal of Responsible Innovation, s. 175-198, 2021.

    Open access
  • Emmert, David B.; Vukovic, Vladimir; Dordevic, Nikola; Weichenberger, Christian X. et al.

    Genetic and Metabolic Determinants of Atrial Fibrillation in a General Population Sample: The CHRIS Study

    Ingår i Biomolecules, 2021.

    Open access
  • Brey, Philip; Dainow, Brandt; Erden, Yasemin J.; Matar, Amal et al.

    SIENNA D6.3: Methods for translating ethical analysis into instruments for the ethical development and deployment of emerging technologies

    2021.

    Open access
  • Matar, Amal

    SIENNA D5.2: An international code of conduct for data sharing in genomics

    2021.

    Open access
  • Holmström, Inger K.; Kaminsky, Elenor; Höglund, Anna T; Carlsson, Marianne

    A survey of nursing teachers’ awareness of discrimination and inequity in telephone nursing care

    Ingår i BMC Nursing, 2021.

    Open access
  • Svalastog, Anna Lydia; Wilson, Shawn; Hansen, Ketil Lenert

    Knowledge versus Education in the Margins: An Indigenous and Feminist Critique of Education

    Ingår i Education Sciences, 2021.

    Open access
  • Gupta, Anvita; Wolff, Annemarie; Northoff, Georg

    Extending the "resting state hypothesis of depression"-dynamics and topography of abnormal rest-task modulation

    Ingår i Psychiatry Research, 2021.

  • Shah, N.; Viberg Johansson, Jennifer; Haraldsdóttir, E.; Bentzen, H.B. et al.

    Governing health data across changing contexts: A focus group study of citizen’s views in England, Iceland, and Sweden

    Ingår i International Journal of Medical Informatics, 2021.

    Open access
  • Viberg, Jennifer; Shah, Nisha; Haraldsdóttir, Eik; Bentzen, Heidi Beate et al.

    Governance mechanisms for sharing of health data: An approach towards selecting attributes for complex discrete choice experiment studies

    Ingår i Technology in society, s. 101625-101625, 2021.

    Open access
  • Schölin Bywall, Karin; Esbensen, Bente Appel; Lason, Marta; Heidenvall, Marie et al.

    Functional capacity vs side effects: treatment attributes to consider when individualising treatment for patients with rheumatoid arthritis

    Ingår i Clinical Rheumatology, 2021.

  • Sallin, Karl; Evers, Kathinka; Jarbin, Håkan; Joelsson, Lars et al.

    Separation and not residency permit restores function in resignation syndrome: a retrospective cohort study

    Ingår i European Child and Adolescent Psychiatry, 2021.

  • Viberg Johansson, Jennifer; Bentzen, Heidi Beate; Shah, Nisha; Haraldsdóttir, Eik et al.

    Preferences of the Public for Sharing Health Data: Discrete Choice Experiment

    Ingår i JMIR Medical Informatics, 2021.

    Open access
  • Grauman, Åsa; Hansson, Mats G.; James, Stefan; Hauber, Brett et al.

    Communicating Test Results from a General Health Check: Preferences from a Discrete Choice Experiment Survey

    Ingår i Patient, s. 649-660, 2021.

    Open access
  • Mascalzoni, Deborah; Biasiotto, Roberta; Borsche, Max; Brüggemann, Norbert et al.

    Balancing scientific interests and the rights of participants in designing a recall by genotype study

    Ingår i European Journal of Human Genetics, s. 1146-1157, 2021.

    Open access
  • Godskesen, Tove; Höglund T., Anna; Frygner Holm, Sara; Eriksson, Stefan

    YouTube as a source of information on clinical trials forpaediatric cancer

    Ingår i Information, Communication and Society, s. 1-14, 2021.

  • Melotti, Roberto; Scaggiante, Federica; Falciani, Michela; Weichenberger, Christian X. et al.

    Prevalence and determinants of serum antibodies to SARS-CoV-2 in the general population of the Gardena valley

    Ingår i Epidemiology and Infection, 2021.

    Open access
  • Stahl, Bernd Carsten; Akintoye, Simisola; Bitsch, Lise; Bringedal, Berit et al.

    From Responsible Research and Innovation to responsibility by design

    Ingår i Journal of Responsible Innovation, 2021.

    Open access
  • Andersson, Christina; Bergsten, Katja; Lilliengren, Peter; Norbäck, Kajsa et al.

    The effectiveness of smartphone compassion training on stress among Swedish university students: A pilot randomized trial

    Ingår i Journal of Clinical Psychology, s. 927-945, 2021.

  • Damiani, Stefano; Scalabrini, Andrea; Ku, Hsiao-Lun; Lane, Timothy Joseph et al.

    From local to global and back: An exploratory study on cross-scale desynchronization in schizophrenia and its relation to thought disorders

    Ingår i Schizophrenia Research, s. 10-12, 2021.

  • Prasuhn, Jannik; Borsche, Max; Hicks, Andrew A.; Goegele, Martin et al.

    Task matters-challenging the motor system allows distinguishing unaffected Parkin mutation carriers from mutation-free controls

    Ingår i Parkinsonism & Related Disorders, s. 101-104, 2021.

  • Bjelobaba, Sonja

    Deterring cheating using a complex assessment design: A case study

    Ingår i The Literacy Trek. Journal of literacy and language studies, s. 55-77, 2021.

    Open access
  • Milne, Richard; Morley, Katherine I.; Almarri, Mohamed A.; Anwer, Shamim et al.

    Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries

    Ingår i Genome Medicine, 2021.

    Open access
  • Russo, Selena; Monzani, Dario; Pinto, Cathy Anne; Vergani, Laura et al.

    Taking into Account Patient Preferences: A Consensus Study on the Assessment of Psychological Dimensions Within Patient Preference Studies

    Ingår i Patient Preference and Adherence, s. 1331-1345, 2021.

    Open access
  • Grauman, Åsa

    Policyrekommendationer: Informera om risk för hjärt- och kärlsjukdomar

    2021.

    Open access
  • Biasiotto, Roberta; Pramstaller, Peter P.; Mascalzoni, Deborah

    The dynamic consent of the Cooperative Health Research in South Tyrol (CHRIS) study: broad aim within specific oversight and communication

    Ingår i BIOLAW JOURNAL-RIVISTA DI BIODIRITTO, s. 277-287, 2021.

    Open access
  • Steindal, Simen A; Nes, Andréa Aparecida Gonçalves; Godskesen, Tove; Lind, Susanne et al.

    Advantages and Challenges in Using Telehealth for Home-Based Palliative Care: Protocol for a Systematic Mixed Studies Review

    Ingår i JMIR Research Protocols, 2021.

  • Khan, Zeenath Reza; Dyer, Jarret; Bjelobaba, Sonja; Gomes, Sandra F. et al.

    Initiating count down-gamification of academic integrity

    Ingår i International Journal for Educational Integrity, 2021.

    Open access
  • Hofmann, Robin; Abebe, Tamrat Befekadu; Herlitz, Johan; James, Stefan et al.

    Routine Oxygen Therapy Does Not Improve Health-Related Quality of Life in Patients With Acute Myocardial Infarction-Insights From the Randomized DETO2X-AMI Trial

    Ingår i Frontiers in Cardiovascular Medicine, 2021.

    Open access
  • Falahee, Marie; Simons, Gwenda; DiSantostefano, Rachael; Valor Méndez, Larissa et al.

    Treatment preferences for preventive interventions for rheumatoid arthritis: protocol of a mixed methods case study for the Innovative Medicines Initiative PREFER project

    Ingår i BMJ Open, 2021.

    Open access

Biobanks- och registerforskning: Etik och juridik

Vi har ägnat många år åt konstruktiv vägledning kring hanteringen av etiska och juridiska aspekter av forskning på mänskligt vävnadsmaterial och persondata. Vi samarbetar med biomedicinare och publicerar våra resultat i vetenskapliga tidskrifter.

Vi har sammanställt våra publikationer (med abstracts) i en rapport. Rapporten är på engelska och uppdaterades i juni 2016.

Ladda ner vårt rapport om biobanker och register

Biobank and registry ethics & law, rapportomslag

Vårdetik och omvårdnadsetik

Relalationen mellan sjuksköterska och patient är inte jämlik. Hur ser man till att mötet ändå blir respektfullt? Vilka etiska dilemmans uppstår i sjuksköterskors vardag? Och hur kan man lösa dem?

Mycket av vår kliniskt inriktade forskning handlar om vårdetik och omvårdens etik. Vi har sammanställt våra publikationer på området (med abstracts) i en rapport. Rapporten är på engelska.

Ladda ner rapporten on "Nursing ethics"

Neuroetik och medvetandefilosofi

Vår forskning kring neuroetik och neurofilosofi är mångvetenskaplig. Vi närmar oss frågorna från teoretiska, filosofiska, sociala, bio-politiska och kliniska perspektiv. Forskningen sker i nära samarbete med neurovetenskapen så att vi kan förstå de etiska och filosofiska frågorna som forskarna behöver hantera. I den här rapporten hittar du alla våra publikationer på området med abstracts. Rapporten uppdaterades i november 2016.

Ladda ner vår rapport om Neuroetik

Senast uppdaterad: 2021-09-24