BBMRI-ERIC

BBMRI-ERIC is a joint European platform for biobanking that will provide a workable research infrastructure to process, share and store human biological samples, including associated medical data.

BBMRI-ERIC

One of the biggest hurdles for biobank research today is the differences in regulatory frameworks for biobanking within the EU. BBMRI-ERIC is a European Research Infrastructure Consortium, or 'ERIC', for biobanking.Part of this work is providing a common service for the ethical, legal and societal issues.

This ELSI service service facilitates and supports cross-border exchanges of human biological resources and data attached for research uses, collaborations and sharing of knowledge, experiences and best practices.

BBMRI-ERIC ELSI Policy

As a step toward a BBMRI-ERIC ELSI policy, the ELSI Common Service arranged a workshop on sharing and access to data and human biospecimens for the benefit of patients. The workshop was held in September 2015.

Download workshop report

Provide your expertise

CRB's ELSI-Service team

Our expert team is part of the ELSI service with:

The service is directed by Anne Cambon Thomsen at the French national centre for scientfic research (CNRS) and co-directed by Mats G. Hansson at CRB, Marialuisa Lavitrano from the Milano-Bicocca University and Jasper Adriaan Bovenberg, founder of the Legal Pathways Institute.

Biobank and registry ethics & law

For many years, researchers at CRB have provided constructive advise on how to deal with ethical and legal aspects of research using human tissue material and personal data. We have collaborated with biomedical scientists and published our findings in peer reviewed journals. As a summary of this research we have compiled a list of publications with abstracts. We have grouped them thematically to help you find the ones you might be interested in reading. Our publications deal with ethical frameworks and policy, regulatory aspects of biobank and registry research, informed consent, ethical review, integrity concerns, trust, genetic testing, indicental findings, commercialization, public and patient perceptions, rare diseases, children & biobanks & genetics, and biobank studies.

Download our biobank and registry report

Biobank and registry ethics & law, report cover