CHIP ME: Citizen health through public private initiatives
We are part of CHIP ME, a community of researchers and stakeholders to promote public-private initiatives in public health genomics.
Chip me has three working groups: Research & Ethics, Genomics & Markets, and Science & Values.
CHIP ME is a COST Action (number IS1303). COST is supported by the EU RTS Framework Programme, the Council of European Union and ESF
Contact at CRB
- Heidi C. Howard, PhD Neurogenetics, Senior Researcher
- Deborah Mascalzoni, PhD Bioethics, Senior Researcher
Dr Heike Felzmann from the National University of Ireland Galway is action chair of CHIP ME, with Professor Pascal Borry from KU Leuven as Action Vice Chair.
Your DNA Your SAy
>> Tell us what you think
This is a film-survey experience on DNA and medical data sharing.
We are investigating risk information from serval perspectives.
Biobank and registry ethics & law
For many years, researchers at CRB have provided constructive advise on how to deal with ethical and legal aspects of research using human tissue material and personal data. We have collaborated with biomedical scientists and published our findings in peer reviewed journals. As a summary of this research we have compiled a list of publications with abstracts. We have grouped them thematically to help you find the ones you might be interested in reading. Our publications deal with ethical frameworks and policy, regulatory aspects of biobank and registry research, informed consent, ethical review, integrity concerns, trust, genetic testing, indicental findings, commercialization, public and patient perceptions, rare diseases, children & biobanks & genetics, and biobank studies.