Research ethics & law
Biomedical research using biobanks and registries have been and are objects for many studies related to questions about informed consent, privacy and how to handle incidental findings in association with such research. Other projects concern the recruitment of patients for clinical trials and the participation of patients in research.
Many studies are carried out within international consortia and funded by the European Commission. CRB is responsible for ethical and legal issues within the Swedish infrastructure for biobank based research, BBMRI.se. The research in research ethics provides updated knowledge for courses in research ethics and training of graduate students: At Uppsala Univeristy we run mandatory courses for PhD students in medicine, pharmacy, science and technology. We also offer an online research ethics training for medicine and the life sciences.
Biobanks and registries in research
We aim for a biobank and registry management that satisfies ethical and legal demands from the research community, the public and the individual.
Stefan Eriksson is looking at how regulation confirms to basic rational demands on a legitimate regulative system.
Handling incidental findings
How should we handle incidental findings in biobank and -omics research? Jennifer Viberg Johansson's PhD project examined the arguments for and against disclosure of incidental findings.
Biobank perspectives: Current issues in biobank ethics and law
Science publications is important for scientific work and for scientific merit. In recent years the publication system has begun to change rapidly. Stefan Eriksson is looking at the consequences and how these changes should be dealth with.