Charlotta Ingvoldstad Malmgren

Charlotta Ingvoldstad Malmgren

Charlotta Ingvoldstad Malmgren

Associated Researcher

PhD

Charlotta Ingvoldstad Malmgren is an associated researcher at CRB. She works at Karolinska University Hospital's Centre for Fetal Medicine as a genetic counsellor and in advocacy at their Centre for Rare Diseases. Her primary research focus is counselling, patient perspectives, and ethics within genetics and genomics including research questions on decision making, informed consent, and uncertain results, with a focus on genomics as well as prenatal diagnosis. She is one of the co-chairs of Genomic Medicine Sweden's working group for social, aspects, patient engagement , and education, she is the founder of the Swedish Network on Information about Prenatal Diagnosis, and she is part of the Swedish Society for Medical Genetics and Genomics Ethics and Policy Group. She is part of the European COST-action EnGagE and involved in Your DNA - Your Say, a global research project about the public and patient's willingness to share their genomic data. 

Email: charlotta.ingvoldstad@crb.uu.se

Recent publications

  • Milne, Richard; Morley, Katherine I.; Almarri, Mohamed A.; Anwer, Shamim et al.

    Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries

    Part of Genome Medicine, 2021.

    Open access
  • Middleton, Anna; Milne, Richard; Almarri, Mohamed A; Anwer, Shamim et al.

    Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?

    Part of American Journal of Human Genetics, p. 743-752, 2020.

    Open access
  • Pestoff, Rebecka; Svensson, Karin; Paneque, Milena; Ingvoldstad, Charlotta

    Developing a national certification pathway for genetic counselors in Sweden: a short report

    Part of Journal of Community Genetics, p. 113-117, 2020.

  • Moldovan, Ramona; McGhee, Kevin A.; Coviello, Domenico; Hamang, Anniken et al.

    Psychiatric genetic counseling: A mapping exercise

    Part of American Journal of Medical Genetics Part B, p. 523-532, 2019.

  • Hartwig, Tanja Schlaikjaer; Miltoft, Caroline Borregaard; Ingvoldstad Malmgren, Charlotta; Tabor, Ann et al.

    High risk-What's next?: A survey study on decisional conflict, regret, and satisfaction among high-risk pregnant women making choices about further prenatal testing for fetal aneuploidy

    Part of Prenatal Diagnosis, p. 635-642, 2019.

  • Abacan, MaryAnn; Alsubaie, Lamia; Barlow-Stewart, Kristine; Caanen, Beppy et al.

    The Global State of the Genetic Counseling Profession

    Part of European Journal of Human Genetics, p. 183-197, 2019.

    Open access
  • Pestoff, R.; Moldovan, R.; Cordier, C.; Serra-Juhe, C. et al.

    How practical experiences, educational routes and multidisciplinary teams influence genetic counselors' clinical practice in Europe

    Part of Clinical Genetics, p. 891-898, 2018.

  • Paneque, Milena; Serra-Juhe, Clara; Pestoff, Rebecka; Cordier, Christophe et al.

    Complementarity between medical geneticists and genetic counsellors: its added value in genetic services in Europe

    Part of European Journal of Human Genetics, p. 918-923, 2017.

  • Lindgren, Peter; Stadin, Magdalena; Blomberg, Inger; Nordin, Karin et al.

    Information about first trimester screening and self-reported distress among pregnant women and partners - Comparing two methods of information giving in Sweden.

    Part of Acta Obstetricia et Gynecologica Scandinavica, p. 1243-1250, 2017.

  • Ternby, Ellen; Axelsson, Ove; Annerén, Göran; Lindgren, Peter et al.

    Why do pregnant women accept or decline prenatal diagnosis for Down syndrome?

    Part of Journal of community genetics, p. 237-242, 2016.

  • Roshanai, Afsaneh Hayat; Lindgren, Peter; Nordin, Karin; Ingvoldstad, Charlotta

    Swedish University Students' Opinion Regarding Information About Soft Markers

    Part of Journal of Genetic Counseling, p. 146-156, 2016.

  • Ternby, Ellen; Ingvoldstad, Charlotta; Annerén, Göran; Axelsson, Ove

    Midwives and information on prenatal testing with focus on Down syndrome

    Part of Prenatal Diagnosis, p. 1202-1207, 2015.

  • Skirton, Heather; Cordier, Christophe; Ingvoldstad, Charlotta; Taris, Nicolas et al.

    The role of the genetic counsellor: a systematic review of research evidence

    Part of European Journal of Human Genetics, p. 452-458, 2015.

  • Roshanai, Afsaneh Hayat; Ingvoldstad, Charlotta; Lindgren, Peter

    Fetal ultrasound examination and assessment of genetic soft markers in Sweden: are ethical principles respected?

    Part of Acta Obstetricia et Gynecologica Scandinavica, p. 141-147, 2015.

  • Ternby, Ellen; Ingvoldstad, Charlotta; Annerén, Göran; Lindgren, Peter et al.

    Information and knowledge about Down syndrome among women and partners after first trimester combined testing

    Part of Acta Obstetricia et Gynecologica Scandinavica, p. 329-32, 2015.

    Open access
  • Ingvoldstad, Charlotta; Ohman, Susanne Georgsson; Lindgren, Peter

    Implementation of combined ultrasound and biochemistry for risk evaluation of chromosomal abnormalities during the first trimester in Sweden

    Part of Acta Obstetricia et Gynecologica Scandinavica, p. 868-873, 2014.

  • Skirton, Heather; Barnoy, Sivia; Ingvoldstad, Charlotta; van Kessel, Ingrid et al.

    A Delphi study to determine the European core curriculum for Master programmes in genetic counselling

    Part of European Journal of Human Genetics, p. 1060-1066, 2013.

  • Ternby, Ellen; Annerén, Göran; Ingvoldstad, Charlotta; Lindgren, Peter et al.

    What do pregnant women know about Downs syndrome when they come for prenatal diagnosis?

    p. 134-134 2012.

  • Hayat Roshanai, Afsaneh; Lampic, Claudia; Ingvoldstad, Charlotta; Askmalm, Marie Stenmark et al.

    What Information Do Cancer Genetic Counselees Prioritize?

    Part of Journal of Genetic Counseling, p. 510-526, 2012.

  • Ingvoldstad, Charlotta

    Barnmorskors upplevelse av att förmedla information och ge vägledning om genetik och fosterdiagnostik till blivande föräldrar

    2007.

    Open access
Last modified: 2021-06-11