Josepine Fernow works with research dissemination and communication. She co-ordinates activities and manages CRB’s external and internal communications. She is the communications manager and public lead for the management work package in the IMI-funded public-private partnership PREFER and leads communication work packages in the H2020 funded SIENNA and STARBIOS2 projects.
Phone: +46 18 471 62 22
Giving patients a voice in drug development
PREFER is a five year public-private research project where academic researchers and the pharmaceutical industry work together to find out when and where patients want, can and should be involved in drug development
Responsible Research and Innovation (RRI)
Promoting organisational change in 6 bioscience institutions.
Technology, ethics and human rights
Genomics, Enhancement, AI & Robotics
The SIENNA project will address ethical issues in three new and emerging areas with major socio-economic impact.
Managing genetic risk information
Research generates huge amounts of genetic information. How should we handle it? That is what we are trying to find out in a large international research project.
The Human Brain Project
The Human Brain Project is one of the European Community flagship projects and involves over 100 groups. Kathinka Evers leads the philosophical research.
CRB provides ELSI helpdesk service for Swedish researchers through Biobank Sweden.
ELSI Commmon Service for BBMRI-ERIC
BBMRI-ERIC aims to increase efficacy and excellence of European bio-medical research. We are part of the ELSI-common service.
Rare disease research
RD-Connect is a 7th framework project that aims to build an integrated platform connecting registries, biobanks and clinical bioinformatics for rare disease research. We address the ethical, legal and social issues (ELSI).
Josepine Fernow on the Ethics Blog
- How can we set future ethical standards for ICT, Big Data, AI and robotics? 2019-07-11 10:50
- Ethics, human rights and responsible innovation 2017-10-31 13:39
- More biobank ethics and law 2017-03-13 14:10
- Research data, health cyberspace and direct-to-consumer genetic testing 2016-12-14 11:18
- More biobank perspectives 2016-09-27 10:21
- Learning ethics online 2014-11-26 09:49
Setting future ethical standards for ICT, Big Data, AI and robotics: The contribution of three European projects
Part of Orbit Journal, 2019.
Quality of online information about phase I clinical cancer trials in Sweden, Denmark and Norway
Part of European Journal of Cancer Care, 2018.
Individual and Societal Responsibilities: Ethical dilemmas related to interventions (Workshop)
Part of Ending Childhood Obesity. Actions through Health and Food Equity, p. 14-19, 2016.