Josepine Fernow
Josepine Fernow
Co-ordinator
Communications
Josepine Fernow works with research dissemination and communication. She co-ordinates activities and manages CRB’s external and internal communications. She is the communications manager and public lead for the management work package in the IMI-funded public-private partnership PREFER and leads communication work packages in the H2020 funded SIENNA and STARBIOS2 projects and contributes to communications tasks the IMI ConcePTION project.
E-mail: josepine.fernow@crb.uu.se
Phone: +46 18 471 62 22
Patient preferences
Giving patients a voice in drug development
PREFER is a five year public-private research project where academic researchers and the pharmaceutical industry work together to find out when and where patients want, can and should be involved in drug development
STARBIOS2
Responsible Research and Innovation (RRI)
Promoting organisational change in 6 bioscience institutions.
Technology, ethics and human rights
Genomics, Enhancement, AI & Robotics
The SIENNA project will address ethical issues in three new and emerging areas with major socio-economic impact.
Managing genetic risk information
Research generates huge amounts of genetic information. How should we handle it? That is what we are trying to find out in a large international research project.
The Human Brain Project
The Human Brain Project is one of the European Community flagship projects and involves over 100 groups. Kathinka Evers leads the philosophical research.
Biobank Sweden
ELSI service
CRB provides ELSI helpdesk service for Swedish researchers through Biobank Sweden.
Medication safety in pregnancy and breastfeeding
The IMI funded ConcePTION project is building a pan-European ecosystem for generating, monitoring, and providing robust information on medication safety in pregnancy and breastfeeding.
Rare disease research
RD-Connect is a 7th framework project that aims to build an integrated platform connecting registries, biobanks and clinical bioinformatics for rare disease research. We address the ethical, legal and social issues (ELSI).
Josepine Fernow on the Ethics Blog
- How can we set future ethical standards for ICT, Big Data, AI and robotics? 2019-07-11 10:50
- Ethics, human rights and responsible innovation 2017-10-31 13:39
- More biobank ethics and law 2017-03-13 14:10
- Research data, health cyberspace and direct-to-consumer genetic testing 2016-12-14 11:18
- More biobank perspectives 2016-09-27 10:21
- Learning ethics online 2014-11-26 09:49
Publications
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Individual and Societal Responsibilities: Ethical dilemmas related to interventions (Workshop)
Part of Ending Childhood Obesity. Actions through Health and Food Equity, p. 14-19, 2016.