Josepine Fernow
Josepine Fernow
Centre Coordinator
Project Manager, Science Communication
Josepine Fernow is a communications strategist and centre coordinator. She is the communications manager and public lead for the management work package in the IMI-funded public-private partnership PREFER and leads communication work packages in the H2020 funded MINDtheGEPs and recentlly completed SIENNA and STARBIOS2 projects. She is also communications task lead for issues related to responsible research and innovation in the FET Flagship Human Brain Project and communications manager in the IMI ConcePTION project.
Follow Josepine Fernow on Twitter.
E-mail: josepine.fernow@crb.uu.se
Phone: +46 18 471 62 22
https://orcid.org/0000-0003-4653-7084MINDtheGEPs
Bridging the gender gap in research
We are developing communications strategy to support the impact of gender equality plans in 7 European research organisations.
Medication safety in pregnancy and breastfeeding
The IMI funded ConcePTION project is building a pan-European ecosystem for generating, monitoring, and providing robust information on medication safety in pregnancy and breastfeeding.
The Human Brain Project
The Human Brain Project is one of the European Community flagship projects and involves over 100 groups. Kathinka Evers leads the philosophical research.
Patient preferences
Giving patients a voice in drug development
PREFER is a five year public-private research project where academic researchers and the pharmaceutical industry work together to find out when and where patients want, can and should be involved in drug development
STARBIOS2
Responsible Research and Innovation (RRI)
Promoting organisational change in 6 bioscience institutions.
Technology, ethics and human rights
Genomics, Enhancement, AI & Robotics
The SIENNA project will address ethical issues in three new and emerging areas with major socio-economic impact.
Publications
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Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries
Part of Genetics in Medicine, p. 1120-1129, 2022.
DOI for Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries Download full text 1 (pdf) of Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries Download full text 2 (pdf) of Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries
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Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries
Part of Genome Medicine, 2021.
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Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?
Part of American Journal of Human Genetics, p. 743-752, 2020.
DOI for Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data? Download full text (pdf) of Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?
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Achieving impact: some arguments for designing a communications strategy
Part of RRI implementation in bioscience organisations, p. 177-180, 2019.
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Setting future ethical standards for ICT, Big Data, AI and robotics: The contribution of three European projects
Part of ORBIT Journal, 2019.
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Individual and Societal Responsibilities: Ethical dilemmas related to interventions (Workshop)
Part of Ending Childhood Obesity. Actions through Health and Food Equity, p. 14-19, 2016.