Emilia Niemiec investigates ethical, legal and social implications of genomics in SIENNA project. She is a post-doc at the Centre for Research Ethics & Bioethics. During her PhD (Erasmus Plus PhD Programme in Law, Science and Technology) she studied ethical and legal issues of whole genome sequencing. She conducted the first empirical study of direct-to-consumer offer of whole genome sequencing. Emilia holds degrees in Bioethics (MSc, University of Leuven) and Biotechnology (MEng, Warsaw University of Life Sciences).
Technology, ethics and human rights
Genomics, Enhancement, AI & Robotics
The SIENNA project will address ethical issues in three new and emerging areas with major socio-economic impact.
Your DNA Your SAy
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This is a film-survey experience on DNA and medical data sharing.
Ethical, legal and social issues of gene editing
Gene editing technology pushes genetics beyond diagnostic testing and into the realm of treatment. We address the ethical, legal and social issues associated.
Attitudes of publics who are unwilling to donate DNA data for research.
Part of European Journal of Medical Genetics, p. 316-323, 2019.
Consenting Patients to Genome Sequencing
Part of Clinical Genome Sequencing: Psychological Considerations, 2019.
Include egg donors in CRISPR gene-editing debate
Part of Nature, 2019.
Proteomic and transcriptomic experiments reveal an essential role of RNA degradosome complexes in shaping the transcriptome of Mycobacterium tuberculosis.
Part of Nucleic Acids Research, 2019.
Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia
Part of Human Genetics, 2019.
Analysis of VUS reporting, variant reinterpretation and recontact policies in clinical genomic sequencing consent forms
Part of European Journal of Human Genetics, p. 1743-1751, 2018.
How do consent forms for diagnostic high-throughput sequencing address unsolicited and secondary findings?: A content analysis
Part of Clinical Genetics, p. 321-329, 2018.
Readability of informed consent forms for whole-exome and whole-genome sequencing
Part of Journal of Community Genetics, p. 143-151, 2018.
'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods
Part of Personalized Medicine, p. 311-318, 2018.
Current ethical and legal issues in health-related direct-to-consumer genetic testing
Part of Personalized Medicine, p. 433-445, 2017.