Emilia Niemiec

Emilia Niemic, Postcdoc researcher: Photo: Marc Folland. (c) Wellcome Trust Sanger Institute

Emilia Niemiec

Postdoc researcher

Emilia Niemiec investigates ethical, legal and social implications of genomics in SIENNA project. She is a post-doc at the Centre for Research Ethics & Bioethics. During her PhD (Erasmus Plus PhD Programme in Law, Science and Technology) she studied ethical and legal issues of whole genome sequencing. She conducted the first empirical study of direct-to-consumer offer of whole genome sequencing. Emilia holds degrees in Bioethics (MSc, University of Leuven) and Biotechnology (MEng, Warsaw University of Life Sciences).

E-mail: niemiec.emilia@gmail.com

Recent publications

  • Middleton, Anna; Milne, Richard; Thorogood, Adrian; Kleiderman, Erika et al.

    Attitudes of publics who are unwilling to donate DNA data for research.

    Part of European Journal of Medical Genetics, p. 316-323, 2019.

    Open access
  • Niemiec, Emilia; Howard, Heidi Carmen

    Consenting Patients to Genome Sequencing

    Part of Clinical Genome Sequencing: Psychological Considerations, 2019.

  • Płociński, Przemysław; Macios, Maria; Houghton, Joanna; Niemiec, Emilia et al.

    Proteomic and transcriptomic experiments reveal an essential role of RNA degradosome complexes in shaping the transcriptome of Mycobacterium tuberculosis.

    Part of Nucleic Acids Research, 2019.

    Open access
  • Vears, Danya F.; Niemiec, Emilia; Howard, Heidi Carmen; Borry, Pascal

    Analysis of VUS reporting, variant reinterpretation and recontact policies in clinical genomic sequencing consent forms

    Part of European Journal of Human Genetics, p. 1743-1751, 2018.

    Open access
  • Vears, D. F.; Niemiec, Emilia; Howard, Heidi Carmen; Borry, P.

    How do consent forms for diagnostic high-throughput sequencing address unsolicited and secondary findings?: A content analysis

    Part of Clinical Genetics, p. 321-329, 2018.

    Open access
  • Niemiec, Emilia; Vears, D. F.; Borry, P.; Howard, Heidi Carmen

    Readability of informed consent forms for whole-exome and whole-genome sequencing

    Part of Journal of Community Genetics, p. 143-151, 2018.

    Open access
  • Middleton, Anna; Niemiec, Emilia; Prainsack, Barbara; Bobe, Jason et al.

    'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods

    Part of Personalized Medicine, p. 311-318, 2018.

    Open access
  • Niemiec, Emilia; Kalokairinou, Louiza; Howard, Heidi Carmen

    Current ethical and legal issues in health-related direct-to-consumer genetic testing

    Part of Personalized Medicine, p. 433-445, 2017.

    Open access
  • Niemiec, Emilia; Borry, Pascal; Pinxten, Wim; Howard, Heidi Carmen

    Content Analysis of Informed Consent for Whole Genome Sequencing Offered by Direct-to-Consumer Genetic Testing Companies

    Part of Human Mutation, p. 1248-1256, 2016.

    Open access
  • Niemiec, Emilia; Howard, Heidi Carmen

    Ethical issues in consumer genome sequencing: Use of consumers' samples and data

    Part of Applied and Translational Genomics, p. 23 23-30 30, 2016.

    Open access