Josepine Fernow has worked with research dissemination and communication for fifteen years. She co-ordinates activities and manages CRB’s external and internal communications. She is also one of the editors of Biobank Perspectives, our newsletter on current issues in biobank ethics and law. Josepine Fernow is also communications manager and public lead for the management work package in the IMI-funded public-private partnership PREFER and leas the communicatons work package in the H2020 funded SIENNA project.
Phone: +46 18 471 62 22
Technology, ethics and human rights
Genomics, Enhancement, AI & Robotics
The SIENNA project will address ethical issues in three new and emerging areas with major socio-economic impact.
Managing genetic risk information
Research generates huge amounts of genetic information. How should we handle it? That is what we are trying to find out in a large international research project.
Giving patients a voice in drug development
PREFER is a five year public-private research project where academic researchers and the pharmaceutical industry work together to find out when and where patients want, can and should be involved in drug development
Josepine Fernow on the Ethics Blog
Ethics, human rights and responsible innovation
Source: Josepine Fernow 2017-10-31
More biobank ethics and law
Source: Josepine Fernow 2017-03-13
Research data, health cyberspace and direct-to-consumer genetic testing
Source: Josepine Fernow 2016-12-14
Rare disease research
RD-Connect is a 7th framework project that aims to build an integrated platform connecting registries, biobanks and clinical bioinformatics for rare disease research. We address the ethical, legal and social issues (ELSI).