Mats G. Hansson

Mats G. Hansson

Professor of Biomedical Ethics

Mats Hansson is the director of the Centre for Research Ethics & Bioethics and has conducted extensive research in biomedical ethics as principal investigator in several multi-disciplinary research projects dealing with issues ranging from ethical, social and legal aspects of the implementation of genetic diagnosis in clinical practice and the use of human tissue materials in research, to clinical and medical ethics. He holds an undergraduate degree in biology (1974) and a doctoral degree of theology (1991). Mats Hansson is Professor of Biomedical Ethics, funded by Uppsala University and the Uppsala County Council together. He also works as a clinical consultant at Akademiska sjukhuset (Uppsala University Hospital).

Phone: +46 18 471 61 97


Mats G. Hansson leads work packages on ethical, legal and social issues in several EU projects on biobank and registry research. He is the principal investigator in Mind the Risk and one of the co-ordinators of BBMRI-ERIC's ELSI common service.

PhD Supervision



Recently in the media

Recent publications

  • Matar, Amal; Höglund, Anna T; Hansson, M G

    “A perfect society”— Swedish policymakers’ ethical and social views on preconception expanded carrier screening

    Part of Journal of Community Genetics, 2018.

    Open access
  • Hansson, Mats G.; Bouder, Frederic; Howard, Heidi Carmen

    Genetics and risk - an exploration of conceptual approaches to genetic risk

    Part of Journal of Risk Research, p. 101-108, 2018.

  • Viberg, Jennifer; Segerdahl, Pär; Hösterey Ugander, Ulrika; Hansson, Mats G. et al.

    Making sense of genetic risk: A qualitative focus-group study of healthy participants in genomic research

    Part of Patient Education and Counseling, p. 422-427, 2018.

  • Schölin Bywall, Karin; Veldwijk, Jorien; Hansson, Mats G.; Kihlbom, Ulrik et al.

    Patient Perspectives on the Value of Patient Preference Information in Regulatory Decision Making: A Qualitative Study in Swedish Patients with Rheumatoid Arthritis

    Part of the patient - patient-centered outcomes research, 2018.

    Open access
  • Bayliss, Kerin; Raza, Karim; Simons, Gwenda; Falahee, Marie et al.

    Perceptions of predictive testing for those at risk of developing a chronic inflammatory disease: a meta-synthesis of qualitative studies

    Part of Journal of Risk Research, p. 167-189, 2018.

  • de Bekker-Grob, Esther; Berlin, Conny; Levitan, Bennet; Raza, Karim et al.

    Giving Patients’ Preferences a Voice in Medical Treatment Life Cycle: The PREFER Public–Private Project

    Part of Patient, p. 263-266, 2017.

    Open access
  • Falahee, Marie; Simons, Gwenda; Buckley, Christopher D.; Hansson, M G et al.

    Patients' Perceptions of Their Relatives' Risk of Developing Rheumatoid Arthritis and of the Potential for Risk Communication, Prediction, and Modulation

    Part of Arthritis care & research, p. 1558-1565, 2017.

  • Schölin Bywall, Karin; Veldwijk, Jorien; Hansson, Mats G.; Kihlbom, Ulrik et al.

    Rheumatoid Arthritis Patients’ Perspectives On The Value Of Patient Preferences In Regulatory Decision-Making During Drug Development: A Qualitative Study

    Part of Value in Health, p. A540-A540, 2017.

  • Oliveri, Serena; Howard, Heidi C.; Renzi, Chiara; Hansson, Mats G. et al.

    Anxiety delivered direct-to-consumer: are we asking the right questions about the impacts of DTC genetic testing?

    Part of Journal of Medical Genetics, p. 798-799, 2016.

  • Silén, Marit; Ramklint, Mia; Hansson, Mats G; Haglund, Kristina et al.

    Ethics rounds: An appreciated form of ethics support

    Part of Nursing Ethics, p. 203-213, 2016.

Biobank and registry ethics & law

For many years, researchers at CRB have provided constructive advise on how to deal with ethical and legal aspects of research using human tissue material and personal data. We have collaborated with biomedical scientists and published our findings in peer reviewed journals. As a summary of this research we have compiled a list of publications with abstracts. We have grouped them thematically to help you find the ones you might be interested in reading. Our publications deal with ethical frameworks and policy, regulatory aspects of biobank and registry research, informed consent, ethical review, integrity concerns, trust, genetic testing, indicental findings, commercialization, public and patient perceptions, rare diseases, children & biobanks & genetics, and biobank studies.

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Biobank and registry ethics & law, report

Biobanks as resources for health

Hansson & Levin (eds) 2003

The potential benefits of biomedicine and biotechnology are considerable, but this is also an area of science and medicine that is sometimes found controversial. Decisions made by scientists, by health care professionals and by policymakers must be well informed and based on knowledge and sound research. Legal experts concerned with public law and intellectual property rights, philosophers and social pharmacists have been collaborating with geneticists, pathologists and doctors in several research projects in order to seek the kind of biobank management that would satisfy the interests of both the research community and the general public as regards new medicines and forms of treatment, whilst protecting the integrity of the individual. A summary of that research is presented in this book.

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Biobanks as resources for health, Hansson & Levin