Associate Professor of Medical Ethics
Senior Lecturer in Medical Ethics
Ulrik Kihlbom is associate professor and senior lecturer in medical ethics at the Centre for Research Ethics & Bioethics. He is currently involved in a five-year project looking at how and when to include patient preferences in the life cycle of medical products (PREFER). He is also responsible for the Medical ethics & law program at the Medical school as well as for an advanced level course on public health ethics. In recent years, he has worked with bioethical issues related to reproduction, ethical particularism, family ethics and autonomy.
Phone: +46 18 471 6233
- Karin Schölin Bywall: The value of patient preferences in drug development for rheumatoid arthritis
- Ashkan Atry: Is Fair Play Compatible with Doping in Sport? (PhD 2013)
- Tove Godskesen: Factors associated with participation in phase1 and phase 3 oncology trials (PhD 2015)
Recently in the media
- Ansvar bör även läggas på forskningsledaren, Svenska Dagbladet Debatt, 16 March 2016
- Efter skandalen: ”Gråzoner sätt blanda bort korten”, Svenska Dagbladet Debatt, 10 March 2016
Managing genetic risk information
Research generates huge amounts of genetic information. How should we handle it? That is what we are trying to find out in a large international research project.
Giving patients a voice in drug development
PREFER is a five year public-private research project where academic researchers and the pharmaceutical industry work together to find out when and where patients want, can and should be involved in drug development
News from the PREFER project
- Factors influencing the value of patient preference studies 2018-09-26
- PREFER: Open science, open access 2018-09-20
- PARADIGM and PREFER connect to make patient engagement in medicines R&D a greater reality 2018-09-12
- From the lab to you: How do medicines get approved? 2018-08-17
- PREFER and neuromuscular disorders 2018-06-27
- Whose preferences are we collecting? 2018-06-26
- Patient engagement: what comes next? 2018-06-24
- FDA issues draft guidance on Patient-Focused Drug Development 2018-06-15
- What Parkinson's patients want from treatment 2018-05-30
- PREFER stakeholder feedback session at DIA Europe 2018-06-04
- Identifying methods and criteria for testing 2018-05-17
- Planning for patient preference studies begins 2018-05-14
- PREFER: the first year 2018-05-08
- Watch PREFER on YouTube 2018-02-21
- Follow PREFER on twitter! 2018-02-16
- PREFER Annual meeting 2018 2017-12-13
- Preference research from the patient perspective 2017-11-22
- PREFER at ISPOR 2017 2017-11-07
- PREFER annual meeting 2017 2017-07-05
- Data management in PREFER 2017-07-05
Particularism in bioethics
This network brings together theorists and practitioners from Philosophy, Psychology and Health Care.
We are part of an international network on ethics of families.
Karin Schölin Bywall will look at how rheumatoid arthritis patient preferences can provide added value in regulatory decision making in the drug development process.
Ethics & law for medical students
Students learn to analyze ethical and legal problems in medical practice and argue for their standpoint.
Public Health Ethics
Study public health ethics this autumn! We offer a 7,5 credit course to advanced level students. You need to speak Swedish. Application deadline: April 15 2016.
Ulrik Kihlbom on the Ethics Blog
Genetic risk and value
Part of Journal of Risk Research, p. 222-235, 2018.
de Bekker-Grob, Esther W.; Juhaeri, Juhaeri; Kihlbom, Ulrik; Levitan, Bennett et al.
Giving patients' preferences a voice in the medical product lifecycle: why, when and how?: The public-private PREFER project: Work package 2
Part of ISPOR Value & Outcomes Spotlight, p. 19 19-21 21, 2018.
Soekhai, V; Whichello, C.; Levitan, B.; Veldwijk, Jorien et al.
Compendium Of Methods For Measuring Patient Preferences In Medical Treatment
Part of Value in Health, p. A684-A685, 2017.
Godskesen, Tove; Kihlbom, Ulrik
"I have a lot of pills in my bag, you know": Institutional Norms in the Provision of Hope in Phase 1 Clinical Cancer Trials
Part of Journal of Oncology Pharmacy Practice, p. 679-682, 2017.
Schölin Bywall, Karin; Veldwijk, Jorien; Hansson, Mats G.; Kihlbom, Ulrik et al.
Rheumatoid Arthritis Patients’ Perspectives On The Value Of Patient Preferences In Regulatory Decision-Making During Drug Development: A Qualitative Study
Part of Value in Health, p. A540-A540, 2017.
Godskesen, Tove; Kihlbom, Ulrik; Nordin, Karin; Silen, Marit et al.
Differences in trial knowledge and motives for participation among cancer patients in phase 3 clinical trials
Part of European Journal of Cancer Care, p. 516-523, 2016.
Ethical Issues in Preconception Genetic Carrier Screening
Part of Upsala Journal of Medical Sciences, p. 295-298, 2016.
Matar, Amal; Kihlbom, Ulrik; Höglund, Anna T.
Swedish healthcare providers' perceptions of preconception expanded carrier screening (ECS)—a qualitative study
Part of Journal of Community Genetics, p. 203-214, 2016.
Ekstrand, Maria; Tyden, Tanja; Kihlbom, Ulrik; Larsson, Margareta et al.
Swedish parents’ interest in preconception genetic carrier screening
Part of Upsala Journal of Medical Sciences, p. 289-294, 2016.
Godskesen, Tove; Hansson, Mats G.; Nygren, Peter; Nordin, Karin et al.
Hope for a cure and altruism are the main motives behind participation in phase 3 clinical cancer trials
Part of European Journal of Cancer Care, p. 133-141, 2015.
Medical ethics, decision-making and patient preferences
Health care and drug development raises several philosophical questions that require practical solutions: How can patients become informed enough to answer questions in a way that is meaningful? How do we make genetic risk information understandable and meaningful? Here, Ulrik Kihlbom reflects on what happens at the intersection of philosophy and empirical work.